Not one of my better nights sleeping. I think I was up most of the night. Everything hurts. I hate that feeling. My headache isn’t helping either. I woke up sneezing so I immediately guzzled down some oregano oil. I just feel blah. I worked out and even that didn’t help. Usually bringing on a sweat helps a little but not today. I was disappointed in my heart rate and felt it didn’t register accurately. That in turn made me…
Amazon’s been promoting shark week on discovery channel for a while now. However, now the promo is Tyson versus jaws, rumble on the reef. Is this really what we’ve lowered ourselves to? I actually like shark week. They’ve actually had some really interesting programs. I think my stepdad’s told me it is the longest running cable event in history. Do really need to be promoting it alongside Mike Tyson in his boxing gloves? OK, maybe it’s just me. It is…
I slept yesterday for 8 hours straight. No bathroom breaks. I can’t even remember the last time that happened. Eight hours of straight, uninterrupted sleep. I didn’t believe it was possible anymore. I wonder if my new heating/ac unit had anything to do with it. Probably not since I don’t think that has any effect on the bladder. I’ve been so tired. I don’t even want to write about it anymore. The topic itself I find exhausting. I rather talk…
Is summer over yet? I’m ready to put on my oversized sweatshirt. It doesn’t matter that I stay indoors with AC the humidity penetrates to my bones. I know this question was asked by Steve over at MSich Chronicles http://msichchronicles.blog/2020/07/29/evansville-heat/, but how do people with MS live in hot, humid places? I’m in countdown mode until I can officially say its Fall. Right around the time of my next Rituxan infusion. For any new readers, I switched back to Rituxan…
This was a weekend of great ideas and completely mindless moments. I thought I’d share them all for you: I pulled a muscle in my butt. In my stronger leg. I was stretching in a simple position. As soon as I pulled the leg up, I felt it. No big deal except, this is normally the favored leg to push myself up to stand with. That move is freaking painful. However, I kind of don’t have a choice. It has…
I spoke with my case manager for my insurance today. Before Covid started, I had a really wonderful case manager. Every month she’d call and check in, as per her job description, but she always made me feel like she genuinely cared. She remembered things about me not necessarily related to my medical case. Then one day she was just gone. I didn’t know if Covid was the reason for the change, if she quit or left, I just had…
This is the best news article I’ve come along in a long time. It was titled: ‘Holy Grail’ MS discovery could prevent disability using diabetes drug For the first time in ages this talks about stopping the disability not reducing relapses. https://www.sciencefocus.com/news/holy-grail-ms-discovery-could-prevent-disability-using-diabetes-drug/ In MS, the protective coating surrounding nerves known as myelin is damaged causing them to become less energy efficient which makes them vulnerable to further damage and causes disability over time, the MS Society said. < p style=”box-sizing: inherit; margin:…
After three years, my aid is moving on. She’s changing her hours to work 12 hour shifts each day during the weekend. This way she can make relatively the same hours in less days and be home with her son. With all the uncertainty of the schools new operating hours, who could blame her.  I witnessed firsthand what it was like when she had a homeschool her son. It was hard for every parent but exceptionally hard for someone…
I’m tired. I start a lot of blogs like that, don’t I? I have put myself through an entire month of working out every single day. Was it worth it? Hell yeah!!! I love challenging myself through workouts. I always did.  Of course everything is completely modified because of my MS, but it’s still incredibly hard for me. On top of that though, I was busy this week. I had my friend from the building up visiting. I had…
Well my appointment with my OT wheelchair evaluators was good and bad. I was having some issues transferring into my new chair. Having issues with my new wheelchair. The bad was the chair doesn’t get an lower. My therapist explained that I need to work on the ways to make transfers work and keep them safe. They definitely recommend training with a sliding board and with a one on one trainer for transfers. Since I won’t be cleared by my…
