Does rain ever affect your multiple sclerosis? I find lately that the moisture in the air does have a small impact on my day. It’s certainly plays a role with my migraines. I’ve had headaches basically all week. However today they are expecting a nor’easter. New York State agencies are gearing up for a Thursday-to-Saturday nor’easter that could drench and blast Long Island with rain and high winds and envelop upstate with snow, officials said. From the moment I woke…
Go me!!!! My aid couldn’t come today, so I couldn’t go to the pool. I guess I could’ve asked my daughter to come with me, she would have, but I didn’t want to bother her. Instead I got my Beachbody programs on my TV and I did my workout. I haven’t done my Beachbody workouts probably since July, thanks to the shoulder tendinitis. I always refused to let MS tell me what I couldn’t do and amazingly it was my…
It’s usually my morning meditation that I decide what I want to blog about. This morning I fell back asleep during my meditation and I never got an idea of what I wanted to say. Right now I’m just staring at the water, hoping something will come to me. When your blog every day, I have to admit, some of my blogs become pointless. I have a feeling this is going to be one of them. I can tell you…
Now that I’m moving, I have to pack. I went from my house to an apartment. It was a lot of downsizing. Now I’m going from an apartment to a condo. So I have to downsize again. I thought it was hard moving from a three bedroom house with a full dining room, living room, kitchen and den into a two bedroom apartment. Now I have to go from a two bedroom apartment with a huge living room, kitchen, crawlspace,…
There’s a reason I have an aide for eight hours a day. There’s a reason I don’t work anymore. Sometimes I feel like I’m running a scam, that I should be working or I don’t need an aide eight hours a day. Especially when someone says lucky you. Let me explain something to you and myself, I’m not a lucky girl. I’m not a lucky girl that I’m on full disability and don’t work. I’m not a lucky girl that…
I don’t like to complain in my blog. Ok, sometimes I do. I live with a chronic illness of multiple sclerosis everyday, eventually you break and post your disgust. I’d like to say that I don’t do it often. That being said, I have to complain this morning over just some stupid stuff that is really all resolved now. It would have been my blog post yesterday but I had that migraine and I just couldn’t focus to write. It…
That is how my friend explained it to me yesterday when I told her how I felt. I’m very excited for my daughter, my college years were some of my favorite years. It’s just has been her and I for so long. My divorce was started in August of 2006. He moved out and it was Mikayla and I and the pets. 11 years and now she’s growing up off to live in NYC and go to school. I know…
This will be a crazy week. My daughter just came home yesterday. She went up to my sister for a long weekend with her boyfriend that went really well. All I know is it’s 9:00am and she’s already out of the house to hang with him before driving him to work. She moves into her NYC dorm this week and by dorm, I mean the New Yorker Hotel. This “dorm” comes complete with tv, refrigerator, fitness room, 24 hour doorman…
Last year at this time, my first blog post said under construction. I hope you enjoyed my weeks worth of revelations of the past year of blog posts. This week, I thought it was gonna be more of a downtime week, didn’t turn out that way. My aide started on Wednesday. Originally I asked for three days three hours a day. The recommendation of the nurse evaluator was for seven days. My case manager and I decided on three days…
I’ve been so involved with the transition to Ocrevus, that I haven’t talked about that I was approved for the nursing aide by my insurance.The evaluator put the request in for 7 days but I really didn’t want an aide 7 days a week. I wouldn’t even know what to do with someone here that many days. My caseworker told me, with the multiple sclerosis diagnosis, it is easy to get the increases if needed. I decided on 3 days a week…
