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Tag: pneumonia

My Head on Straight

My Head on Straight

Good morning world. I am loving the cooler weather with the sunshine shining. I might have a small whiff of fall in the air. I’m ready. I took the entire week off from exercise. I am fine but those booster shots definitely knocked me for a loop. I’m glad I did both the Covid and flu together. I’m more happy to know they’re done for a while. I just looked at my calendar for October, my Rituxan infusion order starts…

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Another Accomplishment

Another Accomplishment

Happy Friday. It’s been another rough week for me but I did have another major victory. I was able to get in the shower for the first time since the end of the December. I have a small shower with no bathtub. However, it isn’t flat to the floor. There is a small step that was difficult for me to navigate before I got sick. After the pneumonia, getting over that step was an obstacle I didn’t think I’d ever…

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Voluntary Best Friends

Voluntary Best Friends

I am still dealing with all the little things, but I’m not as down as I was writing Monday’s blog. I can report that there is still areas I’m making improvements. Tuesday I was actually able to get up from sitting on the toilet seat. It was a “dry run” exercise with my occupational therapist. I was actually able to get up twice. I didn’t even use that seat that goes over the bowl to raise you up. I was…

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Treading water

Treading water

I’ve been overwhelmed lately. I actually missed a day blogging last week. My other blogs were far from anything difficult or heartfelt. I took a hiatus from blogging, dieting and even working out. I just feel very stressed lately because it never seems to end. Every day is another issue. Considering how this year started, the pneumonia, being bed bound, you’d think I could deal with anything. It just seems like every time I get through one obstacle or issue,…

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Processing Feelings

Processing Feelings

I have to say I feel sad. I didn’t want to do much this weekend. I didn’t really want to talk much this weekend. I kind of wanted to hide away. My uncle’s death, my friend’s son, my friend’s sister, it all happened within two weeks of each other. So much sadness. I was so sad for my friends but my uncle hit me really hard. I didn’t want to talk about it the other blog because I wanted to…

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My own discouragement rant

My own discouragement rant

I was determined to get into my comfy chair. Ok getting in isn’t the problem, it’s getting out. The chair is not only low but mushy. I don’t have anything very solid to push myself up to a standing position. I tried to angle the wheelchair in front of me, using the chair’s arms. Unfortunately, that didn’t help either. The end result was being lifted up by both my physical therapist and the aide. I was discouraged. Getting into, excuse…

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Rituxan Infusion Successful

Rituxan Infusion Successful

Well I finally was able to take my MS meds again. Last time was January 19. That was Kesimpta. I made the decision to go back to Rituxan after using Kesimpta for six months. I had 3 UTI’s, Covid and a pneumonia within that 6 months. I didn’t think it was the drug for me. I have had issues with Rituxan in the past, skin issues. I can’t say all my infusions have been smooth sailing. I just never needed…

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Too much emphasis on PT

Too much emphasis on PT

I didn’t write it but looking back at my episode with physical therapy last week https://multipleexperiences.org/2022/04/22/breathing-issues/, may have been a panic attack. It seems that this week things aren’t going much better. I was able to stand right up on Sunday. I got into my wheelchair. I ate dinner at the table for the first time in ages. The next day I couldn’t stand up during physical therapy. This was the third visit that I felt was wasted. Medicare only…

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High heart rate

High heart rate

I am very slowly getting some strength. The key word there is slowly. I knew I would need to have a lot of patience. I just thought maybe there would be a little muscle memory. Unfortunately, my problem was because of muscle atrophy, not muscle weakness. It is not so easy to rebuild muscle 24 years into your multiple sclerosis life. I couldn’t maintain the muscle I had before I ended up in the hospital. My disability always got worse…

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Rocket Ship Yoga

Rocket Ship Yoga

My family means the world to me. They have been my support system for my multiple sclerosis since day 1. However, their support over the ordeal with the Covid and the pneumonia was beyond anything I have ever felt. It actually brought some of my relationships closer. Especially with my sister. She became the first person I text every morning in the hospital. We continued to do this even when I got home. In all the time I was sick…

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