I had a really good final physical therapy session on Monday. I walked further than I walked all this year. Where I am walking to, I don’t know. I have come a long way since coming home from the hospital. Still not where I was. I think some of the disability changes I can live with easily. Some are demoralizing and as an 50 year old woman, they came to fast. Multiple sclerosis is not an easy disease. I’m not…
Another week, another month. I can’t believe it is May already. I feel like I missed something, like two months. It’s a bizarre feeling, 4 months went by and I did nothing, but they flew. I have been in bed for 4 months!!!! When I wasn’t physically sick, I had some dark days mentally. It was very easy to to give up. It still is. In a conversation I had with both my daughter and my life coach, I make…
Last night Minx got in my closet and walked out with one of my shoes. The shoe probably weighed half as much as he did. It made me think of my Marshmallow who used to greet me at the door and would always grab one of my shoes. In my apartment I had steps. we were constantly looking for one of my shoes before I went out. There was always one downstairs and one upstairs. If there were no available…
I’ve been a little sad lately. I’d love to answer I know why but I don’t even know. I just know I feel a little off, a little down, and just not my normal self. I can’t wrap myself up in my spiritual studies well. I haven’t been meditating. My morning affirmations have been difficult. I knew I needed a blog today about things I’m grateful for instead of things that are absent. My daughter’s birthday is on Sunday, she’s…
I’m heartbroken. I just found out yesterday what their building at the end of the block on the water. I knew they were building I just never thought to inquire. I lived by here my whole life so I never in 1 million years thought that they could be building a hotel conference center around the entire corner that will block my view of the water from my condo. These were the only plans I could find, so I don’t…
I’m happy to say I’m all done with Ocrevus for six months. I just have to deal, of course, with the side effects from the steroids. I have to be honest too, these medicines and these infusions mess with my mood. I feel like I haven’t been my happy self in so long. I’m back to living in my four walls of a MS because I haven’t left my apartment. I’ve gone out for physical therapy and a couple errands…
This is a sad but beautiful song by the group Red. It’s about anyone you’ve lost. Guess part of packing and seeing old pictures is also realizing all those who have passed on as well. Hymn for the Missing Red LYRICS I tried to walk together But the night was growing dark Thought you were beside me But I reached and you were gone Sometimes I hear you calling From some lost and distant shore I hear you crying softly…
If I ever thought my breakups were bad, it was just because I never experienced my child go through a breakup. Omg, this must have been the worst 36 hours of my life. I think I prefer the biweekly tears than go through these last 36 hours again. They had a fight and her boyfriend decided he wanted a break for a week. Then my daughter got swept up by her imagination and did a drive by of his house….
I AM SO TIRED I AM TIRED OF BEING BRAVE I AM TIRED OF PRETENDING IM NOT SCARED I AM TIRED OF TAKING A SHOWER AND LOSING EVERY OUNCE OF ENERGY I HAVE IN MY BODY I AM TIRED OF DOING THE RIGHT THING AND IT STILL BITING ME IN THE ASS I AM TIRED OF ALWAYS TRYING TO BE POSITIVE ALL THE TIME I AM TIRED PRETENDING I DONT HATE YOU I AM TIRED OF BEING ALONE IN MY…
He wasn’t eating well and stopped mostly when I went away for the weekend. This wonderful boy waited until I got home to say goodbye. It happened so fast I didn’t know he was about to leave us. If I did. I would have held his paw the whole evening. I will miss him so much.there will forever be an absence in my heart. No other dog will ever be my Boomer. I’m so grateful for all the joy he’s…
