An early birthday present
I bought myself a gift, another Fitbit. This one is the flex2 which can track swimming. One can argue the fact that tracking steps and activity for someone who has multiple sclerosis is kind of pointless, and it may be true but I wanted to see. I am curious on a few points: sleeping, activity and steps. I used to always track how well I slept through my Fitbit. It shows how much you were restless and how much you…
Should I take Ocrevus?
If your doctor has suggested Ocrevus you are certainly moving up the ladder of disease modifying drugs for multiple sclerosis. With each of the IV drugs especially come side effect risks. Ocrevus is no exception. The most serious they show is: Risk of cancers (malignancies) including breast cancer. Follow your healthcare provider’s instructions about standard screening guidelines for breast cancer. That’s a pretty serious risk to consider. They also talk about PML Progressive Multifocal Leukoencephalopathy. This is the brain infection caused…
An elusive molecule that sparks Multiple Sclerosis article from Science Magazine
A very interesting article found on the web from Science Magazine written by Mitch Leslie. This article has been copied below. https://www.sciencemag.org/news/2018/10/elusive-molecule-sparks-multiple-sclerosis-may-have-been-found Our immune cells normally pounce on intruding bacteria and viruses. But in multiple sclerosis (MS), immune cells target the nervous system instead. Now, researchers may have pinpointed a long-sought molecule called a self-antigen that provokes these attacks, pointing a way toward potential new treatments. “The work is monumental, and it’s tantalizing,” says neuroimmunologist Hartmut Wekerle of the Max…
Tired
Not fatigued, yet, but I have physical therapy so give it time. The weather is so wacky and I think that’s why. One day it’s cold, rainy 65 degrees and I’m wearing a sweatshirt. The next day it’s 75 and humid and I’m in shorts. My hair is frizzy again in the middle of October. Amazingly I haven’t had migraines. An absolute blessing. I haven’t had one in at least a month (knock on wood). I’d think with these wacky…
Ocrevus colds prevention tips and natural oils
The sneezing started last night. I am starting my regiment of Doterra Oregano and OnGuard today. Hopefully I could knock it out before it starts. I take Ocrevus so common colds can take longer to leave my system but since I started with the natural oils I’ve been very fortunate not to have that issue. I wrote a lot of information about the oils in this post https://multipleexperiences.org/2018/09/15/schools-back-reminder-about-oils-doterra/ or check out my page https://multipleexperiences.org/doterra-oils/. The common cold could put you…
Accepting the stages of MS
I’ve been looking to get funding for a handicap vehicle for the past few months. It hasn’t gone as well as i was hoping. On top of this my own car is a lease which isn’t over until July 2019. My mother kind of yelled at me for getting ideas in my head prematurely. She isn’t wrong but what I needed to explain to my mom that it wasn’t so much the idea of the handicap vehicle it was the…
Biking for a World Free MS
https://www.facebook.com/donate/249027742420824/ Why We Want to Create a World Free of MS 9! years ago, when I said I wanted to ride 30 Miles for an MS Bikeathon, my step-but-real sister Jamie said “I can barely walk 300 feet – why do they do these events that people with MS could never do?” I said “Maybe it’s because we hope someday you’ll be able to.” I have done this event for 9 years now. Life is harder for Jamie, but I’m…
My barking dog
I don’t know what’s up with my little Marshmallow but he’s become very grouchy in his older age. He’s also become even more protective over me. I get him barking when he sees other dogs walking around outside our condo or hears people outside our door. His new thing is barking at the kids or people who come in that may not sit down. He just barks and barks. It’s loud and annoying. He barks at my aid every morning…
Season change and MS symptoms
Does the change of seasons affect your MS symptoms? I know that the actual seasons affect symptoms like the heat of summer or the cold of winter but I mean the transition between the seasons. I’ve had a tough time with my walking lately and with fatigue. My physical therapist says season change. I found this article online http://tamingmultiplesclerosis.com/multiplesclerosis-seasonchangesarticle.html. Usually I feel effects of season changes maybe from winter to spring. It’s unusual for me to feel this way from…
