What do you say? Is it easy to imagine a different life? A life where you weren't sick. A life where walking wasn't difficult. A life where you can feel if your hair was dry or damp or your clothes are cotton or silk. Each year that goes by the image fades a little more. I've had MS for so long I can't imagine my life without it anymore. The girl who didn't need a walker passed away over 3…
It's better now or I wouldn't be able to write this blog post. I'm a happy passenger in the car, going to visit my sister for the weekend. My day started at around 6 when I woke up but laid in my bed meditating. I like doing that on my coach better but why waste the time laying there in my bed. I purposely showered and did my hair yesterday so I wasn't rushed this morning. It never fails a…
This one is for someone in particular. Wanted to say I miss being your friend and being in your life and you being in mine. I know that it has to be this way for both of us. I respect where we both are in our lives. I like knowing you read my blog and you are still there in the background. Know that I’m there as well. This is my favorite band Linkin Park a fun song with a…
My Ocrevus infusion is going to be on Monday August 14 now. Not the worst thing. My infusion for Rituxan was scheduled originally for July 17th so the change to the new drug set us back roughly a month. My neurologist told me that even though Rituxan is given on a six month schedule, the drug could last up to 9 months effectively. I feel fine and now I only have 5 days to receive an infusion so I am…
Last Monday I had my routine mammogram. I never worry because to me, I already had multiple sclerosis, that was more than enough. However, I do have to admit, that my fingertips have no tactile feeling so I worry that I may not feel anything on a self breast exam. Last week I was so preoccupied and stressed dealing with the approval of my Ocrevus infusion that when I got a message from my doctor about the mammogram, I was completely…
Apple came out with a two-step security verification on the Apple ID. https://support.apple.com/en-us/HT204152 You had to sign up for it. With that enrollment it came with a 16 numeric/alphabetical code called a recovery key. Basically to manage anything on your apple account, you are required to have 2 of 3 security pieces of information; the password, a device or the recovery key. If you happen to misplace your recovery key and have the other information, not a problem you can sign…
I decided that Sunday will be Vegan recipe day. I made this a few months ago when I was going to a friends house for dinner. No one knew it was vegan and everyone ate it. It was delicious. From the site show me the yummy http://showmetheyummy.com/vegan-flourless-chocolate-cake-recipe/ Vegan Flourless Chocolate Cake Ingredients: 1/2 cup cocoa powder 1/2 cup brown sugar packed 1 (15 oz) can pumpkin puree 1 cup pure maple syrup 2 teaspoons vanilla extract 1/2 teaspoon salt 8 oz…
Finally, after countless phone calls and so much unnecessary stress, my insurance approved Ocrevus. However in their approval, they didn’t approve me getting the infusion at Mt Sinai hospital where I was scheduled. I’m approved to go to a place on Long Island about 20 minutes from my house. Since I just got the approval at 5:30 on Friday evening, there was no way to get me scheduled at the new infusion site for Monday so it will be done…
Can you sue an insurance company for stress? I know you can sue debt collectors if their actions cause undue stress. I was wondering about insurance. The stress that I’ve been under for this last week dealing with my insurance is ridiculous. Everyday I speak to them I get a different answer. Yesterday I was told they were waiting for clinical notes and a copy of my last MRI showings I have relapse remitting MS. I can understand if this…
i wanted to add some other good shows that deserved to be mentioned on a binge list. Some I watched more recently and some are shows that had great seasons to start but maybe lost its way but the beginning is worth the binge. The Defiant Ones-HBO. 4 part series about Jimmy Iovine and Dr. Dre and the empire they created. The Fall-Netflix a serial murder investigation Glow-Netflix gorgeous ladies of wrestling a fun comedy Santa Clarita Diet-Netflix also a…
