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Author: Youtwohearts

A day in the life with multiple sclerosis.
The day after the worst of the Covid vaccination

The day after the worst of the Covid vaccination

I’m doing better today. I slept all day yesterday. I even ordered a pizza because I was too sick to microwave or mix up one of my salads. I was so sick that when I was getting a slice one fell on the floor and I couldn’t even bend to pick it up. I let my dogs eat the pizza. I thought Zoey ate it mostly, however this morning Minx has been sick since he woke up. My poor little…

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Covid vaccination reaction

Covid vaccination reaction

All I can tell you is that sucked. I had a rough night. My whole body ached. I couldn’t even sleep through it. I found that ibuprofen did not help and when I finally took Tylenol that took the aches away. I was able to finally get a little sleep between the hours of seven and 10. However I was up again at 11 because it was time for aspirin and my body knew it. Now I’m just waiting for…

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Covid vaccination dose 2

Covid vaccination dose 2

Here I am in the back of my own van. My stepdad and mom are in the front seat. We are on the way to the Bronx for my 2nd Covid vaccination. My appointment was supposed to be on Thursday but snow is expected for that day. So we are on our way. This time I locked the wheelchair down and put on my wheelchair seatbelt. The backseat of my van is not the easiest place to sit. Between the…

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I did it!!!

I did it!!!

Sure the goal is for me not to end up on the floor but let’s be real, it is going to happen. To be able to get myself up off the floor is a big deal. Especially since not even a week ago I was in the exact same predicament and I couldn’t get up. I had to wait for my aide. Once again on the floor. Not yesterday, I learned from my prior week struggle I was in my…

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Valentine’s Day marks 23 years with multiple sclerosis

Valentine’s Day marks 23 years with multiple sclerosis

At the age of 49 I’ve lived almost half my life with the disease. It was the weekend of Valentine’s Day when I was moving into my new home that my left foot started to go numb. Within 4 days it was all the way up the entire side of my body. Within 6 days I was at a neurologist who was asking my mom and I if anyone in my family had MS. Having actually had optic neuritis about…

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My comfy chair is fixed

My comfy chair is fixed

My week ended on a much brighter note that it began. My comfy chair, which has still been out of order, has now been fixed thanks to my amazing abilities and a $13 Amazon part. I’ve spent countless hours on the phone with Bob’s furniture realizing they had no idea what part I was actually talking about. I finally got so frustrated and got a supervisor who had a clue. The part that I was trying to get, that I…

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Once again on the floor

Once again on the floor

Well unfortunately I had a tough morning. It seems my stomach is still having issues. I had to shower upon waking up this morning. I wish I knew what was causing all of this unsettling in my belly over the last few weeks. I’m scared to take anything because the fear of it binding and I experiencing the alternative is just as bad. However this leads me to make many trips necessary and unnecessary to the bathroom in fear of…

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That didn’t go to plan

That didn’t go to plan

Today’s exercise didn’t go quite as planned. This is the first time I couldn’t get up off the floor and overdid it trying. I finally realized I needed to stop for a little and try again so I decided to write my blog. I’m not really tired but I’m hot so a little cool down should help. My head wasn’t in my workout today. My dogs were super annoying. I had Zoey licking my face or any other exposed area…

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Does getting out of bed count?

Does getting out of bed count?

Good morning world. I’m in my chair after my workout drinking a cup of ice coffee. My first cup since Sunday. I spent the day in bed yesterday after being up all night with stomach issues. I emerged from my bed after 4pm to feed the dogs and was back asleep again by 8pm. I slept until almost 9 this morning waking up only one time to use the bathroom. I may have had some stomach issues but I obviously…

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Better out than in

Better out than in

I had quite a few “accidents” this week. It seems my body likes to be either bound up or flowing free. I have yet to master a medium ground. Frustrating as it was, I figured at least I’d have a weight loss this week but even that wasn’t so. Oh well at least that has a medium ground it hovers around on. It got me thinking about when some of these issues first started showing up. I realized how long…

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