Another nasty fall on Saturday morning. I took off the towel rack in my daughter’s bathroom for the second time. My contractor asked if I wanted to install a more secure bar like I have in my own bathroom and like an idiot I declined. Now I asked for the more secure bar to installed next time he is here. In the meantime I am using my own bathroom which both my wheelchair can get in and has the safety…
My birthday was really nice. My friend Angie actually surprise me with vegan muffins and a candle at my nail salon. That was a very embarrassing display but a very sweet one. I think she was more surprised when I explained to her that I haven’t been even eating vegan. I change diet so often who the hell could keep up anyway. That was my first candle of the day. Good thing she gave me that because my second candle…
https://youtu.be/emapZzstxzU Another year has gone by and another number added to my years alive. I certainly am not complaining. I am actually grateful. Things were really good this year. My life was completely changed by many people, friends, family and others that barely know me contributing to my fundraiser for my van. This was at the perfect time when walking with my walker was becoming too difficult. This van gave me freedom. I was able to conserve energy that I…
I was so happy to have nothing to do today. This week has been long already. However within the first hour of waking I realized things weren’t going to be as smooth as I would have liked. It started with a notification from Quest Labs. That is just one of the labs out here I do bloodwork at. Since my last bloodwork was done with my doctor on Tuesday at LabCorp I was curious what this was. It was on…
My doctor appointment went as expected. I will be continuing on Rituxan for the foreseeable future. There really is nothing on the market for me to change to at this point. The question about me getting worse, isn’t really a question, it’s more of a fact. That is what secondary progressive MS is, it’s steady decline or worsening of symptoms. That is what I have and they are really no drugs for that, at least for me. Mayzent Is on…
Today is my mom’s birthday, 3 days before mine. Happy birthday mom!!! My birthday is here again. Came fast. My lucky day and number 22. I have no plans because we celebrate my birthday on Thanksgiving. That has always been the tradition. Actually we celebrate both our birthdays on thanksgiving because we are together. This year will be no exception but I am actually going to dinner with my mom tonight too. My stepdad and I have to take a…
I’m sitting in my van outside my mom and stepdad’s house. The home I grew up in but haven’t entered in close to a year. I became unable to navigate the deck steps to get inside. Between those steps and the leaves I can’t even imagine how slippery it is besides difficult. Today I’m here because they are installing a ramp for me through another entrance in the house. Just in time for Thanksgiving. This will be the first time…
#just wanted to add this note because this was such a dismal post. A few hours after I wrote this post I realize something very important, with secondary progressive MS you are not functional one day to Stuck on the floor another. I don’t have relapses anymore. I now realize I was sick with this abscess infection and it played havoc with my MS. So yes, this is a possible future for me with MS, but it won’t happen overnight….
According to my dermatologist yesterday she strongly feels that these blisters and now abscess are NOT because of an allergic reaction to Rituxan. Blisters and Rituxan More skin issues after Rituxan. She believes I picked up something and taking the Rituxan just helped the infection spread faster. Rituxan did it’s job by wiping out my B cells lower my immune system, or compromising my immune system, at the perfect time. According to the dermatologist the blisters under my breast and…
Last night was a very bad night. All my family and friends who haven’t heard the story I’m sorry you’ll be hearing it through my blog. I am fine. If I wasn’t I wouldn’t be writing this today. I played mahjong yesterday for the afternoon and got home around 3. I was completely exhausted more than normal. I started feeling achy as well. I think I was running a low grade fever because of this abscess on my stomach. More…
