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Author: Youtwohearts

A day in the life with multiple sclerosis.
More skin issues after Rituxan

More skin issues after Rituxan

Something happened after my Rituxan infusion and whatever it is, it is still happening. https://multipleexperiences.org/2019/09/18/allergic-reaction-to-rituxan/. I’ve continued to get these blisters under my breast since my infusion. https://multipleexperiences.org/2019/09/17/blisters-on-breast/ Each one has left a scar so you can count how many there have been on each side. I’ve changed my bras, changed laundry detergent, even try to go bra less white home, they still come. The good news is I am seeing a dermatologist on Thursday as well as my MS…

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Triple Magnesium Complex for bowel issues

Triple Magnesium Complex for bowel issues

Let me tell you, I’ve been dealing with bowel issues for a very long time having multiple sclerosis. https://multipleexperiences.org/2019/04/13/when-the-back-door-garbage-chute-isnt-working/. https://multipleexperiences.org/2019/06/07/backdoor-chute-muscles-missing-signals/. I’ve tried many different things that have worked for a short while only to stop working again. https://multipleexperiences.org/2019/04/19/backdoor-chute-suggestion-worked/. I finally went to see a gastroenterologist for help. https://multipleexperiences.org/2019/07/15/gastroenterologist-visit/ We started me on Linzess and tweaked things because it wasn’t really working out. https://multipleexperiences.org/2019/08/14/gastroenterologist-visit-again/. After trying a few things I landed back on Linzess and Amitiza. Eventually I was either not…

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Defining a day in a life with MS

Defining a day in a life with MS

I realize something last night, for all my complaining about fatigue, I’ve been staying up most nights till 10 o’clock. If you look back to before I saw my doctor, I was in bed by eight and asleep by 8:30. https://multipleexperiences.org/2019/09/03/trip-to-the-neurologist/ This is before he gave me the Adderall. Yes, my body isn’t recovering from my exercise. Yes, I’m still exhausted and finding it hard to move about as easily as I was. However, I’m not at that stage of…

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Curing fatigue naturally

Curing fatigue naturally

I wanted to share information received through my blog post on fatigue. This is why I write so we can share other ideas and thoughts from other patients and their doctors. This is from Sherry and I can’t say how much I appreciate the information. I’ve been struggling from fatigue for a while now and I am really at a loss. I have not tried this yet but I plan on bringing all this information to my doctor when I…

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A ramp for the balcony and a new closet floor

A ramp for the balcony and a new closet floor

I’m happy to report all the work in my condo is now complete. I had some other little projects done as well as fixing the closet. We re-touched my hallway from the scratches I’ve made with the scooter. I’ve hit into the walls many times and the walls were starting to annoy me. I had a ramp made for my balcony. I can now get out there with my scooter to clean the dog pads as well as to sit…

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Why doesn’t fatigue ever go away?

Why doesn’t fatigue ever go away?

It’s another one of those weeks. I overdid it on Tuesday. Overdoing it consisted of sitting at a table helping family with papers and making some phone calls. Why I was so crippled from that I can never understand but I was….completely. Then the migraine started. That was just the beginning because I woke up Wednesday with the migraine and I was still exhausted. My aid was sick too so it was just me. I managed the day ok but…

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21 day meditation experience with Deepak Chopra

21 day meditation experience with Deepak Chopra

I’m late in posting this and I sincerely apologize. Truth is I forgot myself and didn’t start day 1 until today so you still have time to start yourself on your own journey. This is another 21 day FREE meditation experience with Deepak Chopra. These are so inspiring and I really hope you take advantage of this. Click on the link below to sign yourself up and take 20 minutes out of your day to listen to Deepak and meditate….

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My Apple Watch

My Apple Watch

I thought it was going to be so easy, after all I’ve had my iPhone, iPad and my iPod forever. It is not the same thing. I’ve learned that really fast. Thankfully I signed up for the online session with Apple to teach me how to use my watch today at 11.  Every morning I’ve woken up to a different face screen. I have tried to lock this watch at least six different times so that the screen doesn’t…

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Daylight Savings protest

Daylight Savings protest

Why do we still do this? It messes me up for days. My sleep is all out of sorts. It even messes my dogs up. For the last two days my Zoey has been up at 7am which would technically be 8am if we left the clocks alone I didn’t gain an hour of sleep because her rhythmic clock had to use the bathroom. She likes to use the pads on the porch so I had to get up and…

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Week in review

Week in review

I got my Apple Watch yesterday…isn’t it pretty? I have a session with Apple on Tuesday morning to learn how to use it optimally. I’ve been a Fitbit user for 10 years so I need a little help learning how to use this activity app correctly. I set up the SOS Apple Watch here I come for a fall as well as wheelchair mode so it doesn’t count steps just movements. That in itself is so much better than the…

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