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Author: Youtwohearts

A day in the life with multiple sclerosis.
Voluntary Best Friends

Voluntary Best Friends

I am still dealing with all the little things, but I’m not as down as I was writing Monday’s blog. I can report that there is still areas I’m making improvements. Tuesday I was actually able to get up from sitting on the toilet seat. It was a “dry run” exercise with my occupational therapist. I was actually able to get up twice. I didn’t even use that seat that goes over the bowl to raise you up. I was…

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Treading water

Treading water

I’ve been overwhelmed lately. I actually missed a day blogging last week. My other blogs were far from anything difficult or heartfelt. I took a hiatus from blogging, dieting and even working out. I just feel very stressed lately because it never seems to end. Every day is another issue. Considering how this year started, the pneumonia, being bed bound, you’d think I could deal with anything. It just seems like every time I get through one obstacle or issue,…

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Happy 6th Birthday Zoey

Happy 6th Birthday Zoey

My girl turns 6 today. Zoey is the sweetest pup. She will lick you everywhere and loves to snuggle close. She is so smart. She will bark if her toy is under the furniture. If you don’t see it and she’s still barking, she’s always the one that’s right. The toy is somewhere under that furniture. I love everything about her sweet disposition. We started her birthday singing Birthday by the Beatles and bully sticks. She just melts my heart.

My brother Howard’s 13th year for Bike MS

My brother Howard’s 13th year for Bike MS

Every year I put this on my blog. Every year he does this amazing fundraising event in my name. This is a MS fundraiser that I wouldn’t be able to participate in based on the level of my disability. I haven’t been able to ride a bike in many years. That is what is amazing about these fundraisers, most of the time the people participating don’t have MS. I thank everyone who donates. However, I truly thank the people out…

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Welcome to my Online Therapy Group

Welcome to my Online Therapy Group

I have a question for my multiple sclerosis readers, how often do you come across other MSers on the same path as you? I have met many people with similar symptoms. I talk to many who were even diagnosed somewhat similarly. I don’t speak to many who have had the same progression path as me. There are always the similarities in the symptoms we face at certain points. The symptoms of MS are somewhat common as the disease progresses, at…

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Ugh Multiple Sclerosis

Ugh Multiple Sclerosis

I’ve dealt with multiple sclerosis for 24 years yet I can still be surprised by its symptoms. You’d think I wouldn’t be shocked anymore. I had to spend most of my afternoon in my comfy chair. The exterminator was coming back, to treat my room, for the third time. It seems that the guy who boasted about his 12 year experience with bedbug, still missed the bedbugs alive in my room. He reported seeing nothing after I told him specifically…

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Informing Employers of MS Diagnosis

Informing Employers of MS Diagnosis

I was thinking this weekend about when I worked. I’ve read a few MS blogs where people discussed when, if ever, do they disclose their disease to their employer? If you are new to my blog, I was diagnosed with multiple sclerosis when I was 26. I’m 50 years old now. I became disabled when I was 44. That left a lot of years when I worked. I held my last position for 13 years with the same company but…

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Autobiography in Five Short Chapters

Autobiography in Five Short Chapters

I’ve had this on my blog quite a few times. I was reminded of it yesterday in a discussion with my life coach. One of my favorite things I’ve come across during my spiritual journey actually during my life journey. I remember how hard it was going from chapter 1 to chapter 2. I never thought I’d ever get to a new road in life like chapter 5. Yet, I did. I have found more peace and happiness in my…

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New Bathroom Issues, yes they can be worse

New Bathroom Issues, yes they can be worse

I always said I was going to be honest when I wrote my blog. I have told many horrifying embarrassing stories over the 6 years I’ve been blogging. I guess now isn’t the time to stop. I’ve had bathroom issues my whole life. By bathroom, I mean bowel. It was very common for me to go to the bathroom as little as once a week, sometimes longer. I many times had to take laxatives to “move things along“. This in…

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Key to Happiness

Key to Happiness

I remember when I was a kid I used to dream of living in this huge house. I wanted my house to have a lot of land. I didn’t have a clue as a kid about cleaning a house or maintaining a large piece of property. I didn’t have any idea what a mortgage was or how much property taxes could be on large land lots. I wanted a family. I always wanted to have animals. I even fantasized of…

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