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Never Give Up

Never Give Up

I am still making shocking improvements. I walked my hallway in PT. I haven’t done that since last year. https://multipleexperiences.org/2021/06/18/walking-again/. I at one point had a goal to not use the wheelchair in the condo anymore. As much as I would like to believe this is still an attainable goal, it is far down on my goal list. I was amazed I have been able to walk again at all. It took almost 30 minutes to walk roughly 50 feet,…

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Too much emphasis on PT

Too much emphasis on PT

I didn’t write it but looking back at my episode with physical therapy last week https://multipleexperiences.org/2022/04/22/breathing-issues/, may have been a panic attack. It seems that this week things aren’t going much better. I was able to stand right up on Sunday. I got into my wheelchair. I ate dinner at the table for the first time in ages. The next day I couldn’t stand up during physical therapy. This was the third visit that I felt was wasted. Medicare only…

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High heart rate

High heart rate

I am very slowly getting some strength. The key word there is slowly. I knew I would need to have a lot of patience. I just thought maybe there would be a little muscle memory. Unfortunately, my problem was because of muscle atrophy, not muscle weakness. It is not so easy to rebuild muscle 24 years into your multiple sclerosis life. I couldn’t maintain the muscle I had before I ended up in the hospital. My disability always got worse…

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Avoiding brain mush

Avoiding brain mush

I have been expanding my mind. I am still watching mindless television but playing games too. I play dordle and wordle online daily. I even downloaded an app to play wordle throughout the day. I also love Sudoku. I’m good at them too. I play the hard or expert levels. It can take me an hour to play an expert game. I love the challenge. I just want everyone to know I am not completely wasting my brain away. I…

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A lump in the bed

A lump in the bed

My life has changed a lot in the past few months. I went from independent to completely dependent. I can’t do the simplest of things anymore. I can’t just get in my wheelchair and open the refrigerator for my ice coffee. I can’t just grab a sweatshirt from my closet. Hell I can’t even fix my sock when it gets turned around on my foot. A very big pet peeve of mine. I was limited in my dependence prior to…

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Exercise, standing and Bionic Gym

Exercise, standing and Bionic Gym

I am very weak. My legs can’t hold me up for long. PT has been working on just getting me up and standing. I never thought something so simple would be so hard. Let me tell you, it is so hard. I try to sway back and forth shifting my weight as I hold onto a walker. I had to sit down again because I have no endurance. One day I was able to get back up once. The other…

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Monday morning again…

Monday morning again…

We arrived at Monday once again. I feel like I am on a fast track through these days, weeks, months and years. That is saying something considering most of my days are spent in front of the TV. I am far from highly stimulated most days. Yet the days are going fast. I know I’ve said this many times before. I’m sorry I’m repeating myself. I just find it amazing sometimes. I got to spend a few hours with my…

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I’m down 20lbs

I’m down 20lbs

I haven’t talked too much about my weight over the last few months. I did write this post https://multipleexperiences.org/2021/10/04/moving-the-scale-downwards/ as I was making progress in weight loss. I started in July to finally make changes that has finally seen results. So, what did I do? Well, some time ago I wrote about a book my cousin recommended. https://multipleexperiences.org/2019/04/20/the-obesity-code/. It was about a book about how controlling glucose affects weight loss. I always knew that there was something to this but…

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Spasticity update and sleep improvement

Spasticity update and sleep improvement

First I need to give an update on my Bionic Gym and spasticity experiment. In a quick summary I was paying close attention to how my spasticity was after I used my Gym. My blogs during the week discussed it a little further. https://multipleexperiences.org/2021/11/15/bionic-gym-helping-with-spasticity-my-experiment/ and https://multipleexperiences.org/2021/11/17/time-for-a-hair-color-change/. Please remember this is MY experience with Bionic Gym. https://bionicgym.com/?rfsn=6087517.2f5823 The company makes no claims to help with neurological issues. That being said, 100% it made a difference and that’s exactly what I was…

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Bionic Gym helping with Spasticity, my experiment

Bionic Gym helping with Spasticity, my experiment

I am doing a test this week. I think the Bionic Gym is helping with the spasticity. I have been using it later in the day on Monday and Wednesday because of occupational therapy. I am going to adjust the timing of that. I started with Sunday. I normally don’t do any exercise. It is my one day off. It is also the most difficult day for me with spasticity. I figured I would just do one hour at a…

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