I’m always preaching about adapting and I had to make another adaptation for myself. I bought a commode to leave by me to avoid the “accidents”. Too many times I’m just steps sea and it happens. I’ve had the order for the commode since I was in the hospital last year with cellulitis. I kept saying I didn’t need it, my bathrooms were close enough. My caseworker asks me every month because it was recommended by the nurse at my…
Ok warning I’m going graphic here because I need to be honest and there is no other way. I have bladder and bowel control issues. For my bladder I take Toviaz which helps me not have accidents but when I have to go I have a very short window of time to make it to a bathroom. Without this medicine I have NO window of time. My bowels are completely different. I can’t take anything and have no control over…
There was no bad weather in NY that my vacation was cut short. However, today it is 5 degrees with a real feel temperature of negative 15. Yet I’m comfortable and was freezing in Mexico, what was that about? My trip was great but there was things that would have made things easier for me I guess I know now if there is ever a next time. One of my biggest obstacles was the bed. They gave me a step…
It’s been less than 48 hours that I’ve been on vacation and my multiple sclerosis has not been easy. Half of my clothing I’ve worn so far has been washed due to bladder issues. Not a fun way to start. Really MS, you couldn’t keep that shit together for a few days? I’ve had countless people helping life me feet up small steps or onto golf carts from my family to hotel staff because my legs are far from cooperating….
This wasn’t good. I went to play mahjong for the second time yesterday. It is a game like rummy cube with Asian tiles. Your hands must match to an approved hand on a card. You play with four people around a square table taking turns picking and throwing tiles. Not very strenuous unless you have some type of multiple sclerosis symptom making it difficult. I had that MS symptom. At first I was fine, other than my game itself. However…
I was invited to a bbq today that I actually declined. I declined because of the elevator issue in my building https://multipleexperiences.org/2018/08/30/im-stuck/ and also because the bathroom is up an entire flight of steps. The reply to that was “we aren’t taking no for an answer. We will help you up the steps and into the building, whatever we have to do.” Who are these people? Well these are my ex-boyfriends family. I’ve developed a relationship with them that stretch…
So I’m still doing intermittent fasting. In case you don’t know, this site offers a great beginners guide to fasting https://www.healthline.com/nutrition/intermittent-fasting-guide#section3. For me I follow a 16:8 cycle. I eat between the hours of 12-8 and fast the other hours. This is the cycle that works best for me and keeps me from noshing at night. My first post about this kind of eating was done on June 2 https://multipleexperiences.org/2018/06/02/its-not-the-grapes-intermittent-fasting-next/I am surprised it’s been two months already. This is what…
I slept last night. That makes a huge difference. I also got them to stop the saline drip that wasn’t necessary and truthfully was torture for an MS patient with bladder issues. I was peeing every 20-30 minutes yesterday. I took a second bladder urgency pill I am prescribed last night which helped me sleep and cut the bathroom trips down to every few hours. I also used a commode next to my bed. It just went smoother. The doctor…
I went to my friends house yesterday for an impromptu get together for the Fourth of July. It was extremely hot which I know is difficult for me with MS. However, I really wanted to go at least for a little while. I would’ve been fine in the heat if it wasn’t for my bladder. For some reason yesterday, I had to pee every hour. Not that that’s the worst thing in the world, except she has steps. I had…
Today I post a fairly simple question, has anybody used medical marijuana and had a positive effect on your bladder incontinence? I know in the past when I’ve used marijuana one of the better side effects for me, was it caused a hesitancy in my bladder. I can have this sometimes in the middle of the night when I can’t get my muscles to release right away to use the bathroom. The other time has happened was after using marijuana….
