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Tag: daily life with ms

Annoying MS symptoms strike again

Annoying MS symptoms strike again

Ugh my toe hurts. That strange MS symptom that comes once in a while for no reason. It just started hurting in the middle of the night. Same thing always right foot, big toe. Didn’t hurt when I put a shoe on but it is now a dull throbbing with my shoe off and feet elevated, just like when I’m in bed. It actually feels better when I bend it. So annoying. Such a strange symptom too. Just nerves misfiring…

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Safe transfer from my wheelchair

Safe transfer from my wheelchair

Yesterday was the first time I actually went from my wheelchair directly into my bed. My daughter left to go back to school and I am once again alone in the house. I must say the realization of that fact became very clear when I realized how fatigued my legs were. I did a long workout program in the morning because I felt up to the challenge. I always do my hardest program on Sunday because I’m home all day,…

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Next level wheelchair

Next level wheelchair

Friday is here, another quick week. I have plans this evening which will mean I will be in recovery mode all weekend. It doesn’t take much for me to tire out although this wasn’t a terrible week considering all I did. I was out everyday doing activities. That is really big for me. This included my first day back into occupational therapy Dog tired occupational therapy hazard. I was exhausted after that but I was still out for game day…

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Mental exhaustion with MS

Mental exhaustion with MS

Question, do you snap at people when you’ve hit your limit? When all my energy is gone and I’m completely exhausted, I’m known to loose my patience. My fuse is short and I can snap easily. My daughter knows this all to well. It is just like my brain can’t handle anything else in that given moment and all my positivity and mental reasoning goes out the door. I wouldn’t say it happens often anymore but it does happen. I…

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Dog tired occupational therapy hazard

Dog tired occupational therapy hazard

Occupational therapy kicked my ass today. I knew my first day back would be rough but wow, that was super duper tough. He started with these tiny little beads I had to put onto a shape. He let me do this with my hands. How nice of him. I had a star shape. This consumed the first 30 minutes of therapy. Trying to put those teeny tiny beads on the teeny tiny holes with my left hand. I was only…

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A choice to exercise

A choice to exercise

Happy Monday. My aid just told me I look tired. I’m always tired. I can sleep for 24 hours and I’d still wake up tired. I just did my little cardio workout but i was tired. It doesn’t ever matter, I’ve just learned to push through the feeling as I have always done. I bought a treadmill way back when I was still married living in my house. It was used for a total of a month tops before it…

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Occupational therapy evaluation

Occupational therapy evaluation

So I went yesterday for an occupational therapy evaluation at the same place that I’ve been going to therapy for the past four years. However I only participated in OT last year. I never realized I could do both. When my insurance ran out last year I actually took a break for the first time. Normally when my insurance runs out I go on their maintenance program but this time I just decided to continue doing my own exercising at…

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Getting to know a new bathroom floor

Getting to know a new bathroom floor

I knew I shouldn’t write that about falling. I was playing mahjong yesterday and we were actually playing here in my building. It was one of those days where I was just not holding up very well in the game and I was having difficulties keeping up right. OK, it happens. I wasn’t going to stop playing because I was so happy. I haven’t played in so long. my bladder has been really cooperative and I don’t normally have to…

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Still blogging in 2020

Still blogging in 2020

Year 2020, that’s crazy!! How was your first day of the New Year? I’m still here writing a blog to the internet. I love my blog, it is therapy for me, a way for family and friends to understand my daily life and a way to meet other bloggers and people. I should say this everyday, THANK YOU for reading, commenting and inspiring me to continue to write. I’m not a writer, actually English was my poorest subject in school….

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Happy New Year to Everyone

Happy New Year to Everyone

So did you make your New Year’s Resolutions? I don’t make resolutions based on a day in the year but I do have things I’m focusing on in 2020. I’m excited for those tell you about those things. I’m doing Gabby Bernstein’s 21 day manifesting challenge https://gabbybernstein.com/manifestingchallenge/. I’ve never done anything like this and Gabby has never offered anything like this. It starts January 1st so it is like a New Years resolution but I have the ability to access…

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