I am going to attempt to play mahjong today with the girls. This will be my first time since December. I am looking forward to playing. I also hope I can play. It would be a shame if I am still too weak to play. I have had enough reminders as to where I am today as opposed to where I was. Mahjong is my favorite and I really don’t want to be discouraged by something else. I put off…
I had a really good final physical therapy session on Monday. I walked further than I walked all this year. Where I am walking to, I don’t know. I have come a long way since coming home from the hospital. Still not where I was. I think some of the disability changes I can live with easily. Some are demoralizing and as an 50 year old woman, they came to fast. Multiple sclerosis is not an easy disease. I’m not…
I took a nap yesterday. First time I did that in ages. I didn’t sleep well the night before. I knew I needed more sleep. I kept my pajamas on and stayed under my blanket. I spoke to everyone I wanted to talk. I text my daughter and mom to let them know that I was going to sleep. I even put my phone on do not disturb. Thankfully, the house phone didn’t ring through out the afternoon. I appreciate…
Friday again. It was a week ago I wrote about weather changes once again affecting MS symptoms. https://multipleexperiences.org/2022/06/17/mentally-strong/. I had changed PT from Monday to Wednesday because I was having a rough day Monday. Well I guess I was having a rough day Wednesday too. I couldn’t walk five steps. So much for my goal of walking the hallway and back to my condo door. It wasn’t even close. I honestly couldn’t walk a few feet out my door. I…
I am still running on empty this week. It is very strange, I walked the furthest I walked on Monday. Wednesday and Thursday I’ve had difficulty standing up and transferring. When I say difficulty, I mean it’s been harder than it’s had been over the previous weeks. It is requiring more energy to get myself up into the standing position. It is more laborious moving my feet. Good MS days and bad days. I have had some pretty intense workouts…
Some days are better than others. I walked the hallway again yesterday and it was so hard. Ok, it was hard the first time I did it but it was so much harder yesterday. My right leg, which is normally the leg that gives less issues, was very difficult to move. It was difficult from the hip flexor. I had problems moving the leg forward. My left leg, which normally drags, has difficulty clearing a step without my foot impeding…
I am still making shocking improvements. I walked my hallway in PT. I haven’t done that since last year. https://multipleexperiences.org/2021/06/18/walking-again/. I at one point had a goal to not use the wheelchair in the condo anymore. As much as I would like to believe this is still an attainable goal, it is far down on my goal list. I was amazed I have been able to walk again at all. It took almost 30 minutes to walk roughly 50 feet,…
It has taken me almost 6 months but I finally did it. I GOT UP FROM MY COMFY CHAIR. I got up by myself. I actually started standing up when my therapist was a few feet away from me. I didn’t want anyone to touch me. I knew I could get up. I didn’t want to have that hand on me for guidance. I wanted my victory. I deserved my victory. I know the walking was the biggest thing to…
How was your weekend? Despite the scattered showers, it was a nice weekend here. The nautical mile, two blocks from me, starts amping up full speed as of this weekend. With three of the most popular bars being right across from me, it gets very noisy. Unfortunately, the music blends between them so you can’t always make out one song from another. I am always happy at the start of the season. I love the hustle and bustle of the…
I had a good week. I shared my video of me walking in Wednesday. I walked even more during my PT session on Wednesday afternoon. I guess it wasn’t a video fluke of a good MS day. I am actually strong enough to take those few steps. I still can’t get up from my comfy chair but I certainly have hope. I even hit another milestone this week. I had my hair straighten. I had to sit up in my…
