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Tag: daily life with ms

Spasticity update and sleep improvement

Spasticity update and sleep improvement

First I need to give an update on my Bionic Gym and spasticity experiment. In a quick summary I was paying close attention to how my spasticity was after I used my Gym. My blogs during the week discussed it a little further. https://multipleexperiences.org/2021/11/15/bionic-gym-helping-with-spasticity-my-experiment/ and https://multipleexperiences.org/2021/11/17/time-for-a-hair-color-change/. Please remember this is MY experience with Bionic Gym. https://bionicgym.com/?rfsn=6087517.2f5823 The company makes no claims to help with neurological issues. That being said, 100% it made a difference and that’s exactly what I was…

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Bionic Gym helping with Spasticity, my experiment

Bionic Gym helping with Spasticity, my experiment

I am doing a test this week. I think the Bionic Gym is helping with the spasticity. I have been using it later in the day on Monday and Wednesday because of occupational therapy. I am going to adjust the timing of that. I started with Sunday. I normally don’t do any exercise. It is my one day off. It is also the most difficult day for me with spasticity. I figured I would just do one hour at a…

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A tired rant

A tired rant

My daughter came home. Her health insurance is still in NY and she needed to see the “female” doctor. She decided to come home Wednesday evening because she was able to get an appointment for Thursday. Otherwise she would have had to wait until some time in December. She has to go for a sonogram before she leaves Friday morning. I am just happy I got an extra day to see her that was unexpected. I just love her face….

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Since my mom’s 50th surprise party

Since my mom’s 50th surprise party

Tuesday was a beautiful day outside. I was able to once again open windows and let some fresh air flow through the house. A rare thing in the second week of November. This is my favorite time of year. I think I have a blog post every fall saying just that. I love that there are still boats in the water. I love losing myself watching the water as the boats pass. It is always my peaceful place. The nice…

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Put on a happy face

Put on a happy face

Daylights savings was Sunday morning at 2am. I am waiting for this to finally end. I know that there has been legislation within the courts. I also know that each state within each time zone has to approve it to finally do away with it. https://www.google.com/amp/s/amp.usatoday.com/amp/6233980001. This weekend we gained the hour. I was up at my normal time. The clock might have said 7:30 but my body knows it is really 8:30. So do my dogs. Now it will…

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Mid week check-in

Mid week check-in

So far it’s been an interesting week. I finally called my doctor about the spasticity. https://multipleexperiences.org/2021/10/29/spasticity/. However if you check out the blog post’s comments you’ll find a really good suggestion from Tom. Even though I take 10mg of Baclofen daily, I personally never felt like it was a big help for spasticity. I take it daily to keep it in my system. When I do have spells of spasticity, I have the prescription to take up to 3-10mg tablets…

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Spasticity

Spasticity

Good morning. Hopefully it actually is good. It is finally fall weather outside. A lovely crisp 54 degrees. I still have a window open next to me. I am sure my aide thinks I’m insane. I love the chilly air especially when I workout. Eventually I shut them. I’m surprised with this cooler air my spasticity is still really bad in my legs. It can be very difficult to get my leg to bend. It affects my right leg more…

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My week finding agencies

My week finding agencies

Well after my blog on Wednesday, I figured I better lighten things up a little. I just don’t know if I have anything light to talk about. It’s not that anything is necessarily bad but it isn’t that great either. I had terrible spasticity this week. My legs have been super stiff. It has made getting up out of my chair and bed difficult. It is very difficult to move when one or both of your legs don’t want to…

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The things we don’t say

The things we don’t say

Sometimes I stare at this blank page and I really know what I want to say. Other times I really don’t have a clue. There are times I know what I want to say but I am to scared to say it. I fear that I might not write it properly and it would be misunderstood. This might be one of those blogs. Let me say right away I am not depressed. I am not suicidal. I am not trying…

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Intake with Suffolk Independent Living Organization

Intake with Suffolk Independent Living Organization

Yesterday started with a bang, and not a good one. Unfortunately, I heard a crash of what only could be a car hitting something. I got up quickly to look, startled. Well you can imagine how that went. I realized quickly that in case of an emergency, don’t ever count on me. In my startled reaction to the sound, I got up and fell. It took me some time to get myself up. Thankfully, there were many people from my…

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