When transitioning to a wheelchair be sure to see an OT for evaluation
I completely understand why I have the been in the wrong wheelchair all this time. I had a very different experience this morning in preparation for a new wheelchair. I was asked questions to start with. Questions about my home. What accommodations I have done in my home thus far? What is my bathroom shower set up? What is my bed I sleep in? How wide is my kitchen? What difficulties do I have in the bathroom with my current…
I’m going out…my wheelchair evaluation
I’m going out into the zombie apocalypse tomorrow. Wish me luck. It will be my first time out in almost two weeks. I’ve been very good at hiding myself away to keep safe but now I must make an appearance. I finally got an appointment for a wheelchair evaluation at my physical therapy office. I’ve waited four months to be seen. I couldn’t decide to not go. They assured me that the staff is in masks and the gym is…
A week after Rituxan
I went through my blog posts because I couldn’t remember how many times I’ve done Rituxan. I made the switch from Ocrevus back to Rituxan for the March 2019 infusion. This is my 3rd time. I was on Rituxan at an earlier time but was forced to change when Ocrevus came out. My insurance company, at the time, would not authorize Rituxan because it was not approved for multiple sclerosis. I than changed insurance companies once again and asked to…
A blister formed after Rituxan infusion again
On Wednesday I was feeling something itching me under me right breast. I looked many times but didn’t see anything. I was on high alert looking for blister under my breasts. I was very concerned over a repeat episode of the side effects that happened last September. https://multipleexperiences.org/2019/09/17/blisters-on-breast/?preview=true&frame-nonce=b3345af611. When my aid looked on Thursday she was able to see a few little bumps in the area like a rash. We used a little Neosporin on the area. Last night I…
Coronavirus and MS video
I watched this video yesterday and wanted to share it with everyone. It discuss relevant information about this virus and MS. It discusses the drugs we take and the possible risk factors involved. I actually learned something about my own drug and how it effects my immune system. Hope you find it helpful Coronavirus and MS: *THANKING THE MS COMMUNITY FOR SHARING YOUR QUESTIONS AND CONCERNS* with Aaron Boster, MD Neurology-MS SpecialistandDamian Washington, Patient Leader CLICK BELOW TO WATCHSTAY INFORMED- UNDERSTANDING MORE ABOUT…
Rituxan infusion on Sunday
I’m a bundle of nerves which is so unlike me. Between my daughter’s school having a positive case of the virus and choosing to let her stay in Albany My daughter school has a positive case of the coronavirus I feel worried. I’m the mom, I’m supposed to protect my kid but instead I’m keeping her away from me, protecting myself. She’d rather be there, thankfully, but I know the decision is also for my own benefit. My daughter will…
Not liking physical therapy
So after a second day of consuming a regiment of oregano oil and using Doterra Breathe, I got into bed sneezed once and never sneezed again. Achoo-ing through the night. Woke up fine. So strange!!!! I’m doing much better with the Provigil. I’m so happy to report. I am no longer waking up exhausted as if I never slept. That has been such a huge difference that I’ve been able to get back to my life. I have still been…
Another nursing evaluation
I had a nurse evaluation yesterday for the agency. Nothing shocking, mostly paperwork stuff. My medications were listed for the dosage and times I take them. I’m taking 9 different medications at 48 years old. That’s a lot of pills. If you include the vitamins it’s 17. A crazy number yet they all serve a purpose and that’s what the evaluator and I were discussing. Most I take at night because they cause drowsiness so I got the warning about…
MS and body temperature
Everything worked out with the agency. They found an aid to cover the days that my normal aid is out. She is very nice and the dogs are fine. Thankfully it’s all good. I just didn’t sleep well last night. I woke up at 3am and really never fell back asleep. I was sweating all night too. Of course I was wearing a white T-shirt that my hair color has now dyed red spots on. I should have turned my…
