Browsed by
Tag: Kesimpta

Neurologist visits

Neurologist visits

I have to say this cold has kicked the shit out of me. I know taking Rituxan lowers my immune system but I honestly very rarely get sick. Even my issues in 2022 I was on Kesimpta, not Rituxan. The last cold I had was back in 2019 when I went on my last vacation. I went to Mexico with my family. I had the worst cold. I was miserable for the first 4 days of the week’s vacation. I…

Read More Read More

Pincushion Arms and Infusion on Horizon

Pincushion Arms and Infusion on Horizon

I’m sneezing. My first cold of the year. I have been taking my oregano oil for a few days. It has probably helped but it hasn’t stopped the cold like it has in the past. I think things are just not affecting me the same since my whole pneumonia debacle. Oregano oil use to knock out anything as soon as I felt the twinge. Now I feel like it doesn’t do the trick. I’m not use to actually feeling run…

Read More Read More

Rituxan Infusion Successful

Rituxan Infusion Successful

Well I finally was able to take my MS meds again. Last time was January 19. That was Kesimpta. I made the decision to go back to Rituxan after using Kesimpta for six months. I had 3 UTI’s, Covid and a pneumonia within that 6 months. I didn’t think it was the drug for me. I have had issues with Rituxan in the past, skin issues. I can’t say all my infusions have been smooth sailing. I just never needed…

Read More Read More

Finally finished with antibiotics

Finally finished with antibiotics

Yesterday was the last day of the antibiotics. I have been taking a prophylactic drug from the time I got home from the hospital on March 5th. I was taking Atovaquone. This is an anti-fungal, anti-parasite liquid. It is supposed to be banana flavored. I personally would never eat a banana if it tasted like that. This medication is an antibiotic used to treat and prevent pneumonia. It is given to people that can’t take other antibiotics, have HIV or…

Read More Read More

Multiple sclerosis vs pneumonia

Multiple sclerosis vs pneumonia

I last took a Kesimpta shot on January 19. It is now the beginning of March. I had this dilemma of being behind my shot date in January. After Covid and a UTI that put me in the hospital the first time, I needed to be well before I took my shot. That ended up being about 6 weeks after the last shot Kesimpta dosage instruction is every 4 weeks. I’ve never not taken a disease modifying therapy from the…

Read More Read More

One day at a time

One day at a time

I am still here, barely. I got home from the rehab last Wednesday. It has been rough!! I fell 4 times within the first 12 hours. My strength was significantly worse than I realized. My legs couldn’t hold me up. I realized they didn’t have the strength to push from a seated position to a stand. I was bed bound. This dark cloud came over my world. I refused to talk to anyone. I cried. I am always fighting multiple…

Read More Read More

Remaining hopeful it will help the spasticity

Remaining hopeful it will help the spasticity

Inconclusive. My bladder test was inconclusive. They said that the sample contained bacteria in their that couldn’t have come from the urine alone. I was thrilled I got urine in the cup. That was a challenge in itself for someone with multiple sclerosis and bladder issues. I even was able to use the little handy wipe they give you before you give the sample. I was so proud of myself that day. So much for that gold star. Thank goodness…

Read More Read More

A possible reason for this spasticity

A possible reason for this spasticity

I might have put it all together. A few months ago I treated myself for a possible bladder infection/UTI. Maybe not the smartest thing, but I did. I suspected I had a bladder infection and I had some antibiotics. They weren’t the normal antibiotics usually prescribed for any type of infection in that area, but according to google, it would work. I took them for a total of 5 days. The normal prescription, for the antibiotic I had , is…

Read More Read More

Sometimes the dots don’t connect

Sometimes the dots don’t connect

Well you can get Covid even after you’ve been fully vaccinated. My poor sister has been feeling awful this past week. She tested positive for covid. Like so many people, me included, we’ve gotten a little lax with the mask. I don’t think the vaccinations are lasting as long as they originally thought they would. I got my booster already and I would prefer not to be doing that every few months. I do think that the vaccine need more…

Read More Read More

Weekend plans, or not

Weekend plans, or not

When your day starts off with an accident and a fall, you aren’t feeling so optimistic for a good MS day. Yesterday evening was my second Kesimpta shot. I decided to once again do my thigh region. I did my right leg this time. That might not have been the best place. As soon as the needle pierced the skin, my leg immediately went into a super spasm. I twitched and moved during the injection. It hurt. I know that…

Read More Read More

Verified by MonsterInsights