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Tag: living with a chronic disease

Mental exhaustion with MS

Mental exhaustion with MS

Question, do you snap at people when you’ve hit your limit? When all my energy is gone and I’m completely exhausted, I’m known to loose my patience. My fuse is short and I can snap easily. My daughter knows this all to well. It is just like my brain can’t handle anything else in that given moment and all my positivity and mental reasoning goes out the door. I wouldn’t say it happens often anymore but it does happen. I…

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Dog tired occupational therapy hazard

Dog tired occupational therapy hazard

Occupational therapy kicked my ass today. I knew my first day back would be rough but wow, that was super duper tough. He started with these tiny little beads I had to put onto a shape. He let me do this with my hands. How nice of him. I had a star shape. This consumed the first 30 minutes of therapy. Trying to put those teeny tiny beads on the teeny tiny holes with my left hand. I was only…

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A choice to exercise

A choice to exercise

Happy Monday. My aid just told me I look tired. I’m always tired. I can sleep for 24 hours and I’d still wake up tired. I just did my little cardio workout but i was tired. It doesn’t ever matter, I’ve just learned to push through the feeling as I have always done. I bought a treadmill way back when I was still married living in my house. It was used for a total of a month tops before it…

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Occupational therapy evaluation

Occupational therapy evaluation

So I went yesterday for an occupational therapy evaluation at the same place that I’ve been going to therapy for the past four years. However I only participated in OT last year. I never realized I could do both. When my insurance ran out last year I actually took a break for the first time. Normally when my insurance runs out I go on their maintenance program but this time I just decided to continue doing my own exercising at…

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Getting to know a new bathroom floor

Getting to know a new bathroom floor

I knew I shouldn’t write that about falling. I was playing mahjong yesterday and we were actually playing here in my building. It was one of those days where I was just not holding up very well in the game and I was having difficulties keeping up right. OK, it happens. I wasn’t going to stop playing because I was so happy. I haven’t played in so long. my bladder has been really cooperative and I don’t normally have to…

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A day off from MS, my one wish

A day off from MS, my one wish

So far so good. I probably shouldn’t say that, I’ll jinx myself. I’ve been fall free for a few weeks letting all my bruises finally heal. Although I must admit to a bad MS day yesterday that put me in a bad mood. I once again took off a handle on my kitchen cabinet with the wheelchair and marked up a wall. I’ve had this kitchen cabinet repaired twice already. It is just frustrating sometimes in the wheelchair because the…

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No place like home

No place like home

I had a great week with my family and now I’m home. I am back in my normal environment. I’m back where everything is set up specially for me and my disability. I must say there is a certain relief I feel being home. I feel more secure in my own space. I know it is normal, this is my home, set up for me, by me, to meet my everyday needs. Of course I’d feel more secure here. Yet…

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Making my disability work in new environments

Making my disability work in new environments

Not a bad place to be to write a blog post. It is a rare morning because it is actually only my sister and myself awake at this moment. She is in one chair reading her book with a cup of tea, I’m in the other with writing with a cup of coffee. It is so beautiful up here. She lives about 2 1/2 hours away from me in upstate New York. If we continued another 45 minutes we’d be…

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No more driving in traffic

No more driving in traffic

It’s 8:10 in the morning and I have already cleaned up after the puppies, fed the those furry munchkins, completed my work out and cleared off all my email. Why do you ask have I done so much so early in the morning? My baby, who came home late Wednesday night, had to leave for the airport. She goes to her dad for the Christmas holiday and will be back on Thursday. Unfortunately, her dad always seems to schedule these…

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MS humor from the internet

MS humor from the internet

Keeping things light and fun and posting some funny things I found on the internet on MS, none of which is owned by my site. Hoping to make someone smile today.

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