Ok first mistake I made I stepped on the scale. I have one of the Fitbit Aria scales. It registers my weight by my name. The increase was so great from my Friday weigh in that the scale listed me as a GUEST because how in 2 days could a change that great happen, but it totally did. 12lb increase from Friday morning to Sunday morning. 12lbs THAT’S FREAKING INSANE. I know it’s not real weight it’s from the infusion…
Ive been a Humpty Dumpty collector since I was a baby. I’ve had past blogs on my childhood friends. I still sleep with them at the age of almost 45 and I’m not embarrassed. They make me happy and give me a sense of security. After long days and tough battles I’ve stopped apologizing for the little things that put a smile on my face. The picture above was a pin given to me when I was first diagnosed with…
A week in my MS world. I already had my rant of distress this week. So far the week has been better but it’s Thursday and I still have a lot going on. If you have MS maybe you’ve heard of the studies of biotin in high dosages that seem to help people with more progressive stages of the disease. This study which was done in the US is still small but larger ones have been done in other countries….
I don’t like to rant. I try to keep my blog in a positive state of mind but sometimes I just am exhausted. I don’t need to do much anymore without suffering the consequences. People who haven’t seen me since the day I left my job would be amazed I would think. I have and continue to get worse. Sometimes my hands get so tired I can’t pick up my fork to eat dinner. My legs not only get tired…
I have been a bad blogger. I haven’t told you EVERYTHING. I have been very active on POF and match. Ok well match has been boring I am active because I’m in month 4 of 6. If no match in 6 months I get 6 free. I just have to email at least 5 people per month. However POF has been a different story. I been talking to many guys. My mom jokes if it wasn’t for my MS I’d…
My number 22. This has been my lucky number as long as I can remember my birthday is 11/22 but it was always the 22 that was significant. Some days I see it everywhere…every time I look at the clock 4:22, 8:22 etc. I see it on Facebook I’m the 22 like on a picture. I see it on boxes, mail, signs, it’s everywhere. A few weeks ago i was at a meeting for the pet coalition and they had…
I think it’s happened to most people with disabilities at some point or another that we loose touch with friends as our physical limitations exclude us from activities. Mine happened in two parts. I am one of “those” people that disappear when I’m in a relationship. I know looking back I hurt people because I sided a loyalty with this “loved one” that many of my friends felt wasn’t a good person for me. The problem was I fell in…
I did something yesterday I haven’t done in at least 15 years. I went down to Long Beach and went down the boardwalk. I met a friend who lives right on the ocean front in one of the many beautiful buildings down in Long Beach. She met me on her scooter. Took me to park my car. Put together my scooter and away we went. We went down to from her building to the west ends end of the boardwalk….
Yesterday was a tough day. I went future tripping on the complete unknown of MS. I’m got very worked up and scared of the possible needs of my future when my daughter goes to college. From that point I went into a complete state of panic, sadness and the feeling of being overwhelmed. I cried throughout most of the day to just about anyone I spoke to. It was a mentally and physically debilitating day. i woke up today put…
