22 years ago started my second multiple sclerosis relapse that lead to my diagnosis five days later. My first was optic neuritis but by itself had no name. It was 6 months later on Valentine’s Day weekend when I moved into my new house and my left side started to go numb. What started in my foot quickly traveled through my entire left side up to my face. I had difficulty walking, muscle atrophy and numbness that would never fully…
Since I’ve been suffering through another extreme bout of MS fatigue I tried to figure out what I could do for myself. I know I was out of my prescription Adderall for a couple days, but could that really bring on fatigue so extreme? I don’t believe it was working that well plus this fatigue has been coming on for weeks. I’ve been feeling run down long before the last few days. I was denied by my insurance Provigil, which…
Back to feeling rundown again. Spent yesterday morning in bed with a migraine. Migraine is gone but I’m still exhausted. I went into bed before 9pm yesterday and slept straight through until 4:30am. That is a record. I went back to sleep and woke up at 8:44. I had to take my car in first thing this morning otherwise I might have spent another morning in bed. This is a rough feeling as anyone with multiple sclerosis can tell you….
I have to say things in my family have been sad. Bad news received about a loved ones health has hit everyone hard. It puts having multiple sclerosis in its respected place. A place that has always helped me deal with my disease on a more positive level. I’m here!!! I didn’t receive a death sentence when I was diagnosed with multiple sclerosis. My disease could be difficult but I could still live a very rewarding life. I’m coming up…
I don’t move when I sleep. I’ve slept on my back as long as I can remember. The only thing that moves throughout the night is my head. I may turn to the left or right on the pillow thus leaving the back of my hair slightly knotty yet the front perfect. If it wasn’t for my Marshmallow going under and out of the blankets all night long the bed would look completely undisturbed other then the space where I…
I ended up giving myself an easier week. I needed that. I was too run down trying to do everything. I think I’m feeling somewhat more together again. I love being part of all my activities but in truth they can also take a toll on me. This week I had to pay closer attention and not participate in everything to the fullest. Guess what, my friends are still my friends. No one was offended I cut out early and…
I’m happy to report I have had no strange incidents with my wheelchair, Houdini, this week. My wheelchair might be trying to kill me. However it is only Wednesday and I’m hoping I haven’t spoken too soon. I name all my things: cars, assistive devices, even the TV (although that name was lifted from an episode of Friends). My first rollator name was JJ Walker, the character that said “Dynamite” on Good Times. It was a very heavy sturdy walker…
Meet Hubert He is the Service dog of a woman, Andrea, who participates in therapy every week. She is a lovely woman but her dog, he is amazing. Nothing makes me happier than seeing him. Unlike most Service dogs, Andrea lets him get pet while wearing his hair vest. He gets a lot of love from everyone, especially from me. I conquer occupational, physical and pet therapy all in one day. It was because of this dog I wanted to…
I’m starting to think my wheelchair might be trying to kill me. I feel like the movie Christine by Stephen King except it’s me that is the target. On Saturday once again I got ran over by my wheelchair. I ran myself over with my wheelchair. This time my shirt got caught on the controls again but as it knocked me over it also pinned me up against my balcony door. Since my shirt was caught the wheelchair was still…
It is a gray day here. Windy and rainy. I am in my pajamas and planning on staying this way for the remainder of the day. It has been a rough week for me. I ran myself over with my wheelchair No joke, I’ve fallen again Besides my falls, I have literally scratched up every single wall in my house. I guess in my exhaustion, keeping the wheelchair straight also wasn’t one of my strongest abilities. I am physically spent….
