Elevator is still not working. A special part had to be ordered or something. I am stuck in my condo on the fourth floor. I’d be able to get downstairs with my aid. I do better going down. Of course then once I came home I’d be in trouble. If my aid was with me I could use my scooter and go to the first building. No big deal but tonight is my hair night. Meaning I get my hair…
I’m happy to say they still exist. There is a lovely woman who lives on the first floor of my condo. Her unit faces right where I park my car. She has come out on numerous occasions to help me out of my car if I’m alone or to open the door for me. She’s just lovely but yesterday she did the most gracious thing. At 6:30 my doorbell rang. She came up to tell me that my elevator and…
The assessment today though is important because it’s with my actual insurance company. I already spoke to my case manager who is so awesome and called me back on her private line. She explained to me if they try to give me less hours not to sign anything. This way the case goes into review and more than just this one nurse assessment has a say in my hours allocated. I’m not nervous because it is what it’s going to…
I realized something being away, my home is definitely the easiest place for me. I love my sisters house it is absolutely beautiful. It’s very easy for me to get around on the first floor. However, there is no bathroom with a shower. They made a shower outside which is really cool but it’s a little more difficult for me to get to. It’s difficult for me to navigate her outside property. The outside property is so amazing but getting…
My first unofficial MS relapse was optic neuritis in 1997. Six months before my diagnosis. The optic neuritis wasn’t even diagnosed at the time of the relapse it was realized after my diagnosis. I was working in a fast food restaurant as an assistant manager, who was about to be promoted. However, my manager at my current location and I didn’t always see eye to eye. She added a lot of stress to my situation at work. I couldn’t wait…
It can be so hard sometimes. Each step more laborious than the last. My step dad has a SUV and getting in and out of the car is an ordeal every time. But what upsets me the most is going to my mom and step dads house. The house I grew up in is so difficult now for me to get into. There is a deck on the outside of the front of the house. When it was redone, they…
This was my best purchase for my MS. The scooter comes in three parts the battery, the body and the steering column. It is compact enough to fit into the trunk of my little Honda Civic. I use this all the time and up until the last few years I’d take the scooter in and out of my car and assemble it without any issue. It helped my significantly my last year working. I’d assemble it and zip to my…
It’s quiet this morning. Not the quiet in sounds more in stillness. I’m listening to the gardeners mowing outside as I am gazing at the water. My dogs are even still. Do they know? This morning Zoey didn’t finish her breakfast. In two years Zoey has never not finished a meal. Yesterday she needed a little coaxing and today as soon as I walked out of the kitchen she came with me and wouldn’t stay and eat her food. I…
I swam 25 laps. Yippee!! I drank water before and during my swimming. I had little aches but they didn’t last long and weren’t severe at all. This was the first time I was able to do 25 laps in weeks. It is silly but I’m very excited. It’s the small things with MS. No matter how small a win is I’ve learned to appreciate the win. I’ve dealt with MS for 20 years. I spent most of those years…
This year my daughter is going to University at Albany NY State school. Ranked #108 by Money Magazine This Albany school is part of the State University of New York (SUNY) system and, as the name suggests, is located in New York’s capital city. It’s a relatively large school, with about 13,000 undergraduates and an array of opportunities to match. It boasts more than 150 undergraduate programs, some 250 student organizations and over 1,000 study abroad options. UAlbany’s proximity to…
