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Tag: living with multiple sclerosis

Sometimes you have to laugh

Sometimes you have to laugh

Well sometimes my MS issues lead to funny outcomes. I got my mom to bake Mandel Bread. These are cookies very similar to biscottis. It is one of those recipes passed down through the family for a long time. It use to be so hard to get the dough mixed so we never made them often. Then mom got this great mixer and she can make them in record time. After she cleaned every closet and draw in the house…

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I really need to get a license to drive my wheelchair

I really need to get a license to drive my wheelchair

It really isn’t ALL my fault. You see these are the tires of my wheelchair Those big ones up front give the wheelchair the power but the tiny ones in the back give the direction. I can’t see them and if they are pointed one way and I hit the directional another way, that doesn’t mean I’m going the way I want to go. I’m going the way those tires in the back are pointing first. They steer the wheelchair….

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Secondary Progressive Multiple Sclerosis

Secondary Progressive Multiple Sclerosis

For my wheelchair evaluation, I’m going out…my wheelchair evaluation my neurologist needed to submit a letter of need. Due to the coronavirus, we did this via teleconference the second week of April. He’s been my neurologist for 22 years. He has files upon files upon files on May. We laugh, actually, at how many times my files have been thinned and moved to storage. My file still always remain as thick as medical encyclopedia. I explain this so you know…

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Buzzing noise in my ears

Buzzing noise in my ears

I’ve realized something over the last few months, I never have quiet. My ears always have what I can only describe as a buzzing sound in them. I know, sounds like tinnitus, but it’s not ringing. Not only is it it not ringing, I hear fine, it doesn’t bother me or throw me off balance and it isn’t loud or annoying. I’ve just noticed the sound is always there. I’m not sure when I started noticing it but I know…

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Hot, sweaty, cold and warm

Hot, sweaty, cold and warm

I’ve had so many blogs about this topic. Regulating my body temperature is not going well these days. It can be very frustrating. The sweating happens a lot after i eat. It is because my food is hot. The hot food causes my body temperature to rise and then I start sweating. Really makes no sense. Most normal people eat a hot meal and don’t have any issues. Not me, I eat, I get overheated. WTF!!! It happens all the…

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I’m not disabled, I’m mom

I’m not disabled, I’m mom

I did well yesterday My words are my actions. I managed to use the walker until after 2pm. I completed 3 sets of 10 squats but I can admit I pulled myself up on the last few. I was done!!! I’m happy to say that I recovered and had strength to get myself up into my bed without assistance and without lowering the bed to the flat position. I was proud of myself. My daughter comes into my room every…

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My words are my actions

My words are my actions

One thing I can say about myself is I’m not a slacker. If I say I’m going to do something, I’m going to do it. I wrote about my weakness in my legs the other day My muscles are getting weaker. In the blog I realized I had to do something. So I first thought on safety. I can’t fatigue myself to the point I can’t transfer. My daughter has been so helpful when my aid isn’t around but she’s…

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My muscles are getting weaker

My muscles are getting weaker

I have to be honest, my legs are super tired by the end of the night. I’ve been having some real issues getting myself into bed. Luckily my daughter has been around to assist and readjust my legs. My original thoughts were why? I’m resting most of the day after I exercise. Then it occurred to me, I’m moving even less now than the little I was moving before. This is bad. The more I’m in hibernation, the weaker I’m…

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My hair is grey and my nails are breaking

My hair is grey and my nails are breaking

Seems everyone is saying the same thing, at least everyone in my age bracket. I don’t care so much about my nails and truthfully I could do my own hair. I just know I’d never match my color so I’ll leave it to the professionals. I’m getting my magic sleek done as soon as this is over anyway and it changes my hair color. Picture makes me laugh. I’m grateful this is what is consuming my mind these days. I’ve…

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Working out with MS disability and weakness

Working out with MS disability and weakness

Good morning. I just finished my LesMills workout. I’ve been doing Sh’bam on there which is cardio dancing stuff. It’s fun but I wish I could be doing some of their other workouts like Grit or Pump but my body’s weakness doesn’t allow for that anymore. I have to revise all workouts I do to a chair. Then I have a problem holding weights. I’ve purchased hand weights that I wear like gloves and use them for all my workouts….

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