I’m happy to report that I have no blisters today. I had three little red marks last night that looked almost like welts. This morning I only saw one. I can’t even begin to tell you the relief that was for me. I will be able to continue Rituxan until something better comes along. That isn’t the greatest statement but it is better than the alternative of putting me on a drug that might not work for me. The infusion…
I’m a bundle of nerves which is so unlike me. Between my daughter’s school having a positive case of the virus and choosing to let her stay in Albany My daughter school has a positive case of the coronavirus I feel worried. I’m the mom, I’m supposed to protect my kid but instead I’m keeping her away from me, protecting myself. She’d rather be there, thankfully, but I know the decision is also for my own benefit. My daughter will…
I came across this article and wanted to share it with you. I copied some of the FAQs I thought were probably the ones we’d ask the most but I of course gave you the link to the full article. https://multiplesclerosisnewstoday.com/columns/2020/03/06/coronavirus-covid-19-diet-vitamin-d-ozanimod FAQs About Coronavirus and MS: The recent outbreak of a novel coronavirus (nCoV) strain or variant, called COVID-19, has put nations and health organizations around the world on high alert. Multiple sclerosis (MS) patients could be at a higher…
Well I canceled my therapy until further notice. After my blogs last week Not liking physical therapy PT like it or not…, you’d think I’d be happy making this decision but I really wasn’t. I’m not trying to be overly dramatic about the Coronavirus but I am trying to be smart. In therapy I can name fifty surfaces or more I touch that someone else has touch seconds before. They do not sanitize every surface in between patients. It is…
So my mom called yesterday and discussed the coronavirus with me and my weakened immune system. I can’t lie I was expecting this conversation with her and was pretty amazed she’s lasted this long. I also have to admit it’s been in my head. To make things worse, my infusion is coming up. I decided to write to my MS specialist. This is what she wrote me back: Hi Jamie, I hear you. Right now there are only a few…
Good morning and happy hump day to all. Got through the day of exhaustion from therapy yesterday. At least I had a justifiable reason for being fatigued. I even made it to my hair appointment and no more grey hairs, at least for the next 5-6 weeks. My wonderful hair dresser, who is also a good friend, even blew out my hair for me saving me a step so I didn’t have to deal with it myself. I’m almost due…
This might be brief. I just got home from my double therapy sessions. I am wiped out as expected. OT was challenging and PT was hard as expected. I can’t say I dislike my new PT therapist she knows what she is doing but makes me work. She is more focused on my exercises, all of them. Today she had me doing the leg press from the chair. I’ve done this a million times in therapy and found it to…
So after a second day of consuming a regiment of oregano oil and using Doterra Breathe, I got into bed sneezed once and never sneezed again. Achoo-ing through the night. Woke up fine. So strange!!!! I’m doing much better with the Provigil. I’m so happy to report. I am no longer waking up exhausted as if I never slept. That has been such a huge difference that I’ve been able to get back to my life. I have still been…
This has been a very mild winter. I think there has only been one day that it actually snowed and the snow was about an inch. Not that I’m hoping for big snow storms because they’d keep me housebound, but come on, it’s winter. I need at least one good storm. I love looking out the window to the white world when everything is quiet because no one has gone out yet as the snow continues to fall. That is…
I had a nurse evaluation yesterday for the agency. Nothing shocking, mostly paperwork stuff. My medications were listed for the dosage and times I take them. I’m taking 9 different medications at 48 years old. That’s a lot of pills. If you include the vitamins it’s 17. A crazy number yet they all serve a purpose and that’s what the evaluator and I were discussing. Most I take at night because they cause drowsiness so I got the warning about…
