Every year I put this on my blog. Every year he does this amazing fundraising event in my name. This is a MS fundraiser that I wouldn’t be able to participate in based on the level of my disability. I haven’t been able to ride a bike in many years. That is what is amazing about these fundraisers, most of the time the people participating don’t have MS. I thank everyone who donates. However, I truly thank the people out…
I have a question for my multiple sclerosis readers, how often do you come across other MSers on the same path as you? I have met many people with similar symptoms. I talk to many who were even diagnosed somewhat similarly. I don’t speak to many who have had the same progression path as me. There are always the similarities in the symptoms we face at certain points. The symptoms of MS are somewhat common as the disease progresses, at…
I’ve dealt with multiple sclerosis for 24 years yet I can still be surprised by its symptoms. You’d think I wouldn’t be shocked anymore. I had to spend most of my afternoon in my comfy chair. The exterminator was coming back, to treat my room, for the third time. It seems that the guy who boasted about his 12 year experience with bedbug, still missed the bedbugs alive in my room. He reported seeing nothing after I told him specifically…
I was thinking this weekend about when I worked. I’ve read a few MS blogs where people discussed when, if ever, do they disclose their disease to their employer? If you are new to my blog, I was diagnosed with multiple sclerosis when I was 26. I’m 50 years old now. I became disabled when I was 44. That left a lot of years when I worked. I held my last position for 13 years with the same company but…
Happy hump day. Another day, another week. This week was a little different for me because my daughter is home for a visit. I love having her home. I love her energy in the house. I love how she climbs into my bed when she wakes up and is always in my bed before I go to sleep. I miss her when she leaves until I get use to her being gone again. Right now I get to enjoy her…
Ok a new MS research blog brought to my attention by my dad yesterday. It has to do with the Vagus Nerve (pronounced like Las Vegas). The vagus is a major nerve that runs throughout the body and controls crucial functions, like heart function and blood pressure, digestion, breathing and immune response. It also conveys sensory information to the brain about the current status of internal organs; a process termed interoception. The vagus nerve is a major therapeutic target for…
I am going to attempt to play mahjong today with the girls. This will be my first time since December. I am looking forward to playing. I also hope I can play. It would be a shame if I am still too weak to play. I have had enough reminders as to where I am today as opposed to where I was. Mahjong is my favorite and I really don’t want to be discouraged by something else. I put off…
I had a really good final physical therapy session on Monday. I walked further than I walked all this year. Where I am walking to, I don’t know. I have come a long way since coming home from the hospital. Still not where I was. I think some of the disability changes I can live with easily. Some are demoralizing and as an 50 year old woman, they came to fast. Multiple sclerosis is not an easy disease. I’m not…
I have to say I feel sad. I didn’t want to do much this weekend. I didn’t really want to talk much this weekend. I kind of wanted to hide away. My uncle’s death, my friend’s son, my friend’s sister, it all happened within two weeks of each other. So much sadness. I was so sad for my friends but my uncle hit me really hard. I didn’t want to talk about it the other blog because I wanted to…
I took a nap yesterday. First time I did that in ages. I didn’t sleep well the night before. I knew I needed more sleep. I kept my pajamas on and stayed under my blanket. I spoke to everyone I wanted to talk. I text my daughter and mom to let them know that I was going to sleep. I even put my phone on do not disturb. Thankfully, the house phone didn’t ring through out the afternoon. I appreciate…
