I have to say things in my family have been sad. Bad news received about a loved ones health has hit everyone hard. It puts having multiple sclerosis in its respected place. A place that has always helped me deal with my disease on a more positive level. I’m here!!! I didn’t receive a death sentence when I was diagnosed with multiple sclerosis. My disease could be difficult but I could still live a very rewarding life. I’m coming up…
It happened again, I ended up on the floor and couldn’t get up. However how it happened was slightly comical. I ran myself over with the wheelchair. My sweatshirt got caught on the control as I was making my transfer to my chair. I got knocked over with my arm still attached to the chair. If it was on video, trust me we’d all have a laugh. This is why they always tell you to shut off the wheelchair when…
Friday is here, another quick week. I have plans this evening which will mean I will be in recovery mode all weekend. It doesn’t take much for me to tire out although this wasn’t a terrible week considering all I did. I was out everyday doing activities. That is really big for me. This included my first day back into occupational therapy Dog tired occupational therapy hazard. I was exhausted after that but I was still out for game day…
So far so good. I probably shouldn’t say that, I’ll jinx myself. I’ve been fall free for a few weeks letting all my bruises finally heal. Although I must admit to a bad MS day yesterday that put me in a bad mood. I once again took off a handle on my kitchen cabinet with the wheelchair and marked up a wall. I’ve had this kitchen cabinet repaired twice already. It is just frustrating sometimes in the wheelchair because the…
Not a bad place to be to write a blog post. It is a rare morning because it is actually only my sister and myself awake at this moment. She is in one chair reading her book with a cup of tea, I’m in the other with writing with a cup of coffee. It is so beautiful up here. She lives about 2 1/2 hours away from me in upstate New York. If we continued another 45 minutes we’d be…
It’s 8:10 in the morning and I have already cleaned up after the puppies, fed the those furry munchkins, completed my work out and cleared off all my email. Why do you ask have I done so much so early in the morning? My baby, who came home late Wednesday night, had to leave for the airport. She goes to her dad for the Christmas holiday and will be back on Thursday. Unfortunately, her dad always seems to schedule these…
I slept so good last night. I went to before 10:00 and slept through until 4am. Then went back to sleep until almost 9. That’s some quality sleep right there. I was woken up by my dogs running to greet my aid coming through the door. Otherwise I might have slept even longer. Guess I was tired. I’m always tired. Today is mahjong. I love mahjong but I didn’t hold up so well last week. Actually let me rephrase that,…
Another nasty fall on Saturday morning. I took off the towel rack in my daughter’s bathroom for the second time. My contractor asked if I wanted to install a more secure bar like I have in my own bathroom and like an idiot I declined. Now I asked for the more secure bar to installed next time he is here. In the meantime I am using my own bathroom which both my wheelchair can get in and has the safety…
My doctor appointment went as expected. I will be continuing on Rituxan for the foreseeable future. There really is nothing on the market for me to change to at this point. The question about me getting worse, isn’t really a question, it’s more of a fact. That is what secondary progressive MS is, it’s steady decline or worsening of symptoms. That is what I have and they are really no drugs for that, at least for me. Mayzent Is on…
I’m sitting in my van outside my mom and stepdad’s house. The home I grew up in but haven’t entered in close to a year. I became unable to navigate the deck steps to get inside. Between those steps and the leaves I can’t even imagine how slippery it is besides difficult. Today I’m here because they are installing a ramp for me through another entrance in the house. Just in time for Thanksgiving. This will be the first time…
