I’ve lived in my condo officially two weeks today. I know I sound like a broken record and I apologize, but I just am so happy. I’m always blogging about all the bad things, living with multiple sclerosis and how tough it is, it’s just so nice to recognize the good things. Every day I say to my mom, I love this place thank you so much. I probably could say that every day and it would never be enough….
Beautiful sunny day and I wake up with a headache. You know when you just haven’t felt right? That’s how I’ve been lately. I know, I know I have multiple sclerosis. Yes, that’s very true and the chances of it being just something with my multiple sclerosis is extremely high. However I just haven’t felt right. I’m not really sure what’s up. My doctor called with my blood work and again, everything is fine. I definitely don’t have Cushing’s, diabetes…
I’m covered in ink. I have a new printer and I was finally putting it together yesterday. It has six different ink cartridges. As I was opening the ink cartridges, because my hands are all wacky I guess I was holding them wrong so the ink just kept getting on my hands. Thus, I’m covered with ink. I made a mistake with two of the cartridges and didn’t put them in right. Now I was left with the task of…
This is what the doctor firmly believes. I’ve had to slow down because the MS has disabled me and I physically can’t do much. Definitely not what I wanted to hear. However I can’t say that it’s definitely a false thought. He looked at my records over the past two years and I’ve gained a total of 6 pounds. Again you might think oh my God big deal you gained 6 pounds in two years, What’s the big deal? The…
It’s the hump day. That middle of the week where it’s all downhill to Friday. I’ve been up since roughly 5:30 this morning. I’m exhausted. I couldn’t sleep. I should change that, I couldn’t fall back to sleep. Not sleeping is like an instant bad day with MS. I just wrote the ticket for the day. Not that I could’ve controlled it, I just know how my body is when I don’t sleep. My daughter was up all night studying…
It’s been four days that I have owned the condo. However it’s only been three days that my new scooter has been in my condo. I have to admit it, life is a lot easier in the scooter. I’m getting tired doing the walking. Every day is a struggle and it’s just getting harder and harder. My steps are getting slower and slower. I do the simplest task and I am just completely wiped out. Then I have to walk…
Technically I don’t own it, but it’s mine. But I happy day it was. I’m sharing my picture which I normally would never do because it’s not a flattering shot at the smile on my face was pure joy. This is my mom and my stepdad with me. They were just as happy. It was exciting to go to the condo with my own set of keys and open the door and see this…. My own blank slate. It was…
The first snow is supposed to fall today in New York. I always loved the snow. I never liked driving in it but I loved to look at it. I love when it’s quiet and everything is white. You look outside the street the world just seems transformed and peaceful. Everything appears so different. However after that snow, what a mess. There are huge piles of snow because the plows. There are always parking spots that are taken because of…
I always call it a scooter, but technically I guess it’s a wheelchair. I really wanted the hoverRounds MPV5. When I called it was over $4000 and of course my insurance wouldn’t cover it. My thinking was I was going to wait until I became Medicare eligible and get it then. Medicare pays for it. The problem with that outlook is first I’m not gonna be eligible for Medicare until, two years after the start of my disability which is…
This blog was inspired by another MS blogger, who like me, has had this disease along time. Her positive spirit is always an inspiration. https://trippingthroughtreacle.com/2017/11/28/accept-adapt-succeed/ It wasn’t one time, it’s been many times. The first was the day I got my diagnosis. I didn’t understand what MS was. There wasn’t an internet yet I could search. I had to look it up in an old set of encyclopedias that were in my home. It had maybe two paragraphs in the…
