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Tag: ms difficulties

Monday Ramblings from multiple experiences

Monday Ramblings from multiple experiences

It’s usually my morning meditation that I decide what I want to blog about. This morning I fell back asleep during my meditation and I never got an idea of what I wanted to say. Right now I’m just staring at the water, hoping something will come to me. When your blog every day, I have to admit, some of my blogs become pointless. I have a feeling this is going to be one of them. I can tell you…

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Difficulty with the extreme cold and MS

Difficulty with the extreme cold and MS

Last week it in New York it was in the single digits before you add it in the wind factor. At that point it was the negative digits. I went out to eat at a restaurant with my family. The restaurant had open windows on all sides and even though the heat was turned up, it just couldn’t compete with the cold outside. The restaurant was freezing. We were there with cousins we haven’t seen in a while so it…

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Despite my MS, I am very happy

Despite my MS, I am very happy

I’ve lived in my condo officially two weeks today. I know I sound like a broken record and I apologize, but I just am so happy. I’m always blogging about all the bad things, living with multiple sclerosis and how tough it is, it’s just so nice to recognize the good things. Every day I say to my mom, I love this place thank you so much. I probably could say that every day and it would never be enough….

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Another one of those days, weeks, months with Multiple Sclerosis

Another one of those days, weeks, months with Multiple Sclerosis

Beautiful sunny day and I wake up with a headache. You know when you just haven’t felt right? That’s how I’ve been lately. I know, I know I have multiple sclerosis. Yes, that’s very true and the chances of it being just something with my multiple sclerosis is extremely high. However I just haven’t felt right. I’m not really sure what’s up. My doctor called with my blood work and again, everything is fine. I definitely don’t have Cushing’s, diabetes…

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When the simple isn’t so simple

When the simple isn’t so simple

I’m covered in ink. I have a new printer and I was finally putting it together yesterday. It has six different ink cartridges. As I was opening the ink cartridges, because my hands are all wacky I guess I was holding them wrong so the ink just kept getting on my hands. Thus, I’m covered with ink. I made a mistake with two of the cartridges and didn’t put them in right. Now I was left with the task of…

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I’m not losing weight because I have MS

I’m not losing weight because I have MS

This is what the doctor firmly believes. I’ve had to slow down because the MS has disabled me and I physically can’t do much. Definitely not what I wanted to hear. However I can’t say that it’s definitely a false thought. He looked at my records over the past two years and I’ve gained a total of 6 pounds. Again you might think oh my God big deal you gained 6 pounds in two years, What’s the big deal? The…

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Have a very happy hump day

Have a very happy hump day

It’s the hump day. That middle of the week where it’s all downhill to Friday. I’ve been up since roughly 5:30 this morning. I’m exhausted. I couldn’t sleep. I should change that, I couldn’t fall back to sleep. Not sleeping is like an instant bad day with MS. I just wrote the ticket for the day. Not that I could’ve controlled it, I just know how my body is when I don’t sleep. My daughter was up all night studying…

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The reality of my situation

The reality of my situation

It’s been four days that I have owned the condo. However it’s only been three days that my new scooter has been in my condo. I have to admit it, life is a lot easier in the scooter. I’m getting tired doing the walking. Every day is a struggle and it’s just getting harder and harder. My steps are getting slower and slower. I do the simplest task and I am just completely wiped out. Then I have to walk…

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I own a condo

I own a condo

Technically I don’t own it,  but it’s mine. But I happy day it was. I’m sharing my picture which I normally would never do because it’s not a flattering shot at the smile on my face was pure joy. This is my mom and my stepdad with me. They were just as happy. It was exciting to go to the condo with my own set of keys and open the door and see this…. My own blank slate. It was…

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Snowfall and Multiple Sclerosis

Snowfall and Multiple Sclerosis

The first snow is supposed to fall today in New York. I always loved the snow. I never liked driving in it but I loved to look at it. I love when it’s quiet and everything is white. You look outside the street the world just seems transformed and peaceful. Everything appears so different. However after that snow, what a mess. There are huge piles of snow because the plows. There are always parking spots that are taken because of…

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