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Tag: ms difficulties

Hoping for a better tomorrow

Hoping for a better tomorrow

Yesterday was not my greatest morning. Belly issues but I was able to avoid the mess of things by getting in the shower fast enough. I made it in the middle of the night and the morning. I was so proud of myself. Such a stupid thing to be proud of, yet I was. I was until I took a slip in the shower. It’s a small space and at first I held myself up slightly but I couldn’t hold…

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New programs at The MS Gym

New programs at The MS Gym

The MS gym rolled out a brand new site and program yesterday. Based on the new program and functional maps, I was supposed to go back to the beginning again. I just completed the standing strong program. Even though I completed the program, I would have repeated the phases because I was far from mastering the exercises. I have been with the gym for about a year now and I have done each program according to the old functional maps….

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When did it change???

When did it change???

I woke up this morning asking myself this very question. My disability has changed so subtly but so profoundly over the 3 years I’ve been just living in my condo. I specifically remember if I’d fall I’d have to crawl to a piece of furniture to help get myself up. This chair was a major assistance piece. It was the closest furniture from the kitchen or bathroom and I used it so often to aid me back to standing. Never…

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Skin infection, antibiotics and the one who couldn’t deal

Skin infection, antibiotics and the one who couldn’t deal

I was at my primary care physician yesterday because I have a cut on my shin that is infected. I had antibiotics in the house and I started to self medicate and it wasn’t really working so I got an appointment. She prescribed a stronger antibiotic and a cream but thankfully it wasn’t cellulitis or any further issue that needed more care. This was my fault. I knew it was infected for a while. My Zoey never left that spot…

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I did it!!!

I did it!!!

Sure the goal is for me not to end up on the floor but let’s be real, it is going to happen. To be able to get myself up off the floor is a big deal. Especially since not even a week ago I was in the exact same predicament and I couldn’t get up. I had to wait for my aide. Once again on the floor. Not yesterday, I learned from my prior week struggle I was in my…

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Once again on the floor

Once again on the floor

Well unfortunately I had a tough morning. It seems my stomach is still having issues. I had to shower upon waking up this morning. I wish I knew what was causing all of this unsettling in my belly over the last few weeks. I’m scared to take anything because the fear of it binding and I experiencing the alternative is just as bad. However this leads me to make many trips necessary and unnecessary to the bathroom in fear of…

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Better out than in

Better out than in

I had quite a few “accidents” this week. It seems my body likes to be either bound up or flowing free. I have yet to master a medium ground. Frustrating as it was, I figured at least I’d have a weight loss this week but even that wasn’t so. Oh well at least that has a medium ground it hovers around on. It got me thinking about when some of these issues first started showing up. I realized how long…

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Why I believe in the MS Gym

Why I believe in the MS Gym

Ive had pretty significant changes that have been happening regarding my multiple sclerosis symptoms lately. In the grand scheme of things they might not seem significant but for me they are. My feet are pointing and flexing. They actually do it even better than this little video but I took this right after I worked out. My chin muscles are moving my feet really well. Not bad for someone with foot drop. I started phase 2 of standing strong and…

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I’m kicking ass

I’m kicking ass

I’m doing a new program in the MS gym called standing strong. Yep has a lot to do with standing. I started phase 1 with my therapist. It had a lot of floor work as well as chair work. So I started integrating it with my previous program. I’m done with therapy but I really wanted to continue with this new program so I was determined to find something that I could make work without needing someone’s assistance to get…

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Hot flashes

Hot flashes

I am not sure but I might be having hot flashes. I honestly can’t tell because I get the same issue with my MS. How are you supposed to tell the difference? I can overheat,from doing nothing, and start sweating anytime. I’ve blogged numerous times about the issues with MS and regulating body temperature. https://multipleexperiences.org/2018/07/16/regulating-body-temperature-with-ms/ orhttps://multipleexperiences.org/2020/02/25/ms-and-body-temperature/. In the last few weeks I’ve been having these hot flash things. I mean the heat creeps up and I break out in a…

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