Here I am in the back of my own van. My stepdad and mom are in the front seat. We are on the way to the Bronx for my 2nd Covid vaccination. My appointment was supposed to be on Thursday but snow is expected for that day. So we are on our way. This time I locked the wheelchair down and put on my wheelchair seatbelt. The backseat of my van is not the easiest place to sit. Between the…
Sure the goal is for me not to end up on the floor but let’s be real, it is going to happen. To be able to get myself up off the floor is a big deal. Especially since not even a week ago I was in the exact same predicament and I couldn’t get up. I had to wait for my aide. Once again on the floor. Not yesterday, I learned from my prior week struggle I was in my…
At the age of 49 I’ve lived almost half my life with the disease. It was the weekend of Valentine’s Day when I was moving into my new home that my left foot started to go numb. Within 4 days it was all the way up the entire side of my body. Within 6 days I was at a neurologist who was asking my mom and I if anyone in my family had MS. Having actually had optic neuritis about…
Well unfortunately I had a tough morning. It seems my stomach is still having issues. I had to shower upon waking up this morning. I wish I knew what was causing all of this unsettling in my belly over the last few weeks. I’m scared to take anything because the fear of it binding and I experiencing the alternative is just as bad. However this leads me to make many trips necessary and unnecessary to the bathroom in fear of…
I had quite a few “accidents” this week. It seems my body likes to be either bound up or flowing free. I have yet to master a medium ground. Frustrating as it was, I figured at least I’d have a weight loss this week but even that wasn’t so. Oh well at least that has a medium ground it hovers around on. It got me thinking about when some of these issues first started showing up. I realized how long…
I’ve been wanting to get handicap plates on my van since I purchased the vehicle. There was a whole thing with the plates because I purchased the van in New Jersey and I live in New York. At that time I would’ve had to surrender the plates and re-register after I just paid the NYS 2 year registration fee. New York State isn’t very good at giving you money back and prorating so I just stuck with my handicap tag….
Ive had pretty significant changes that have been happening regarding my multiple sclerosis symptoms lately. In the grand scheme of things they might not seem significant but for me they are. My feet are pointing and flexing. They actually do it even better than this little video but I took this right after I worked out. My chin muscles are moving my feet really well. Not bad for someone with foot drop. I started phase 2 of standing strong and…
Good morning world. How are you this fine Tuesday morning? The big snowstorm didn’t leave as much as anticipated, from what I can see from my window. It rained last night and that definitely changed things. Cars are easily going down the road However that little snow and ice doesn’t work well for me. Power wheelchairs don’t like those conditions much. My handicap van ramp likes it even less. When I first got my van I opened the ramp by…
Look, I’m getting my snowstorm. Unfortunately, it’s not a blanket of white because plows already came through but it’s still snowing hard. The expectation is a total snow accumulation of 8-12 inches. I thought it would be more because it actually started around 8 last night. The wind was howling too. I should know I’ve been up a majority of the evening. My Sakara food delivery comes every Sunday night between 12-6am. Since I’m in a gated condo, I always…
I’m doing a new program in the MS gym called standing strong. Yep has a lot to do with standing. I started phase 1 with my therapist. It had a lot of floor work as well as chair work. So I started integrating it with my previous program. I’m done with therapy but I really wanted to continue with this new program so I was determined to find something that I could make work without needing someone’s assistance to get…
