22 years ago started my second multiple sclerosis relapse that lead to my diagnosis five days later. My first was optic neuritis but by itself had no name. It was 6 months later on Valentine’s Day weekend when I moved into my new house and my left side started to go numb. What started in my foot quickly traveled through my entire left side up to my face. I had difficulty walking, muscle atrophy and numbness that would never fully…
Back to feeling rundown again. Spent yesterday morning in bed with a migraine. Migraine is gone but I’m still exhausted. I went into bed before 9pm yesterday and slept straight through until 4:30am. That is a record. I went back to sleep and woke up at 8:44. I had to take my car in first thing this morning otherwise I might have spent another morning in bed. This is a rough feeling as anyone with multiple sclerosis can tell you….
Everyone has been talking about Dr. Pimple Popper so I finally tried it out. Everything everyone said was right, it is so gross but you can’t look away. I watch and my stomach is quesy yet I put on another episode. Makes me not so worried about my fungus that doesn’t hurt and keeps well hidden by socks. Some of the things people live with is unbelievable. I almost appreciate having multiple sclerosis which has worldwide recognition for research and…
I have to say things in my family have been sad. Bad news received about a loved ones health has hit everyone hard. It puts having multiple sclerosis in its respected place. A place that has always helped me deal with my disease on a more positive level. I’m here!!! I didn’t receive a death sentence when I was diagnosed with multiple sclerosis. My disease could be difficult but I could still live a very rewarding life. I’m coming up…
I had my first physical therapy appointment of the year yesterday after my occupational therapy. I knew I’d be exhausted after but I completely underestimated how exhausted I’d actually be. It took me hours to be able to move out of my chair when I got home. Hours!!!! I’m working with a new therapist. She is very nice but she is going to be tough. No different then the other girls I’ve worked with but the difference is she is…
I don’t move when I sleep. I’ve slept on my back as long as I can remember. The only thing that moves throughout the night is my head. I may turn to the left or right on the pillow thus leaving the back of my hair slightly knotty yet the front perfect. If it wasn’t for my Marshmallow going under and out of the blankets all night long the bed would look completely undisturbed other then the space where I…
I ended up giving myself an easier week. I needed that. I was too run down trying to do everything. I think I’m feeling somewhat more together again. I love being part of all my activities but in truth they can also take a toll on me. This week I had to pay closer attention and not participate in everything to the fullest. Guess what, my friends are still my friends. No one was offended I cut out early and…
I’m happy to report I have had no strange incidents with my wheelchair, Houdini, this week. My wheelchair might be trying to kill me. However it is only Wednesday and I’m hoping I haven’t spoken too soon. I name all my things: cars, assistive devices, even the TV (although that name was lifted from an episode of Friends). My first rollator name was JJ Walker, the character that said “Dynamite” on Good Times. It was a very heavy sturdy walker…
Meet Hubert He is the Service dog of a woman, Andrea, who participates in therapy every week. She is a lovely woman but her dog, he is amazing. Nothing makes me happier than seeing him. Unlike most Service dogs, Andrea lets him get pet while wearing his hair vest. He gets a lot of love from everyone, especially from me. I conquer occupational, physical and pet therapy all in one day. It was because of this dog I wanted to…
I’m starting to think my wheelchair might be trying to kill me. I feel like the movie Christine by Stephen King except it’s me that is the target. On Saturday once again I got ran over by my wheelchair. I ran myself over with my wheelchair. This time my shirt got caught on the controls again but as it knocked me over it also pinned me up against my balcony door. Since my shirt was caught the wheelchair was still…
