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Tag: ms life

This week at physical therapy-strengthening the core

This week at physical therapy-strengthening the core

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I asked in therapy about the issue I had in mahjong last week https://multipleexperiences.org/2019/01/04/couldnt-hold-myself-up/ with holding up myself up. We discussed the issue with my weakened core muscle. I’ve had multiple sclerosis for almost 21 years and it was my core region that was on of the first things effected by MS that never got better. It an area that has always given me issues and has always been an area we work on in therapy. A while ago I…

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Couldn’t hold myself up

Couldn’t hold myself up

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This wasn’t good. I went to play mahjong for the second time yesterday. It is a game like rummy cube with Asian tiles. Your hands must match to an approved hand on a card. You play with four people around a square table taking turns picking and throwing tiles. Not very strenuous unless you have some type of multiple sclerosis symptom making it difficult. I had that MS symptom. At first I was fine, other than my game itself. However…

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Back Spasms

Back Spasms

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One of the most common of MS symptoms are spasms. They can range from mild to severely painful. I know many people with both extremes. I am considered mild. I have them in my legs mostly but also in my back. It’s my back spasms that can have the highest degree of range. On a good day I may have a few spasms in the whole day. A bad day I’ll have a few spasms every hour. Even the spasms…

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Back to Forks over Knives, plant based eating

Back to Forks over Knives, plant based eating

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I tried Keto for a few months and it did work for me at first. I did take off weight but eating like that wasn’t something I could do on a long term basis. As I got sick of the food, I started eating bad. I just don’t like cheese and butter all that much after not eating it for over a year. At first it was good like a new treat but that wore off quickly. I did like…

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Multiple Sclerosis and migraines

Multiple Sclerosis and migraines

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I’ve suffered from migraines for over 15 of my 21 years of having MS. I remember when I got the first one. I was driving home from a meeting that was close to one of the NY airports and I was in major traffic. Probably a little stressed because I had to pick up my daughter at school. It started as an Aura, one that I’d get to know very well over the years, but this was the first time….

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Brrrr it’s cold in here

Brrrr it’s cold in here

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Well actually it’s cold out of here and by that I mean the pool. I go down and it’s all warm. I get into the pool and it’s nice and warm and I get out and I’m frozen. I think it is once again a big thanks to my MS that once that chill sets in I can’t get warm until I hit a hot shower. That leads to overheating and acting up my other MS issues. Not the most…

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7 Perfect Gift Ideas for a Loved One Living with MS

7 Perfect Gift Ideas for a Loved One Living with MS

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I saw this article on healthline https://www.healthline.com/health/multiple-sclerosis-ms-gift-guide This list was put together by a MS blogger and her blogger community of items they felt were great for holiday gift giving. The article goes into full details of each item and where you can find them. It even explains why each item is a good gift. The holiday gift for a person with MS: Cooling clothing and gear Help around the house Home Entertainment Productivity or adaptive technology Wear for your…

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Still intermittent fasting 7 months later

Still intermittent fasting 7 months later

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I am still doing this all these months later. I now eat between the hours of 11-7. I also don’t usually drink my coffee until 11 as well. The truth is I haven’t lost weight from this but I haven’t gained weight either. I have to agree with the doctors that losing weight when you lose mobility is very difficult. I sit most of the time so I don’t burn as many calories as the average person. I do try…

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Disability Van Shopping

Disability Van Shopping

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You think this would be easy, but it really isn’t. I have seen now a place the converts Honda Pilots which I love but they aren’t located in New York. I even found handicap accessible trucks That’s crazy. Look at that!!! Then I found smaller cars with hatchbacks that would have been perfect for me before this but who knew. There are tons of cars out there plus tons of adaptive equipment that can be put into a vehicle to…

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MS Focus on Research for November

MS Focus on Research for November

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This month they had a few interesting articles on new MS research I thought I’d enclose. https://msfocus.org/About-Us/MSF-News-Articles/167 A new study shows an overlooked source may be able to replace lost nerve insulation and provide a new way to treat multiple sclerosis. The discovery of mature myelin-producing cells’ capacity for repair opens new opportunities to slow or reverse the disease. That may call for new therapeutic approaches that rally the oligodendrocytes to reach out with new lifelines to damaged myelin sheaths….

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