It happened again. I got blisters on my pinky toes and wearing shoes became quite an issue. It started about a month ago where my shoes started rubbing and I knew it was going to be a problem. Guess what, it was. I’ve been wearing the same sneakers for a long time never had a problem and all of a sudden they’ve become tight. The truth is I even know why. I didn’t take my water pill for a couple…
Doesn’t take much to exhaust someone with multiple sclerosis. For me it was being out late two nights in a row. I’m paying the price now. Just exhausted. It’s unfortunate that the body can’t handle the simplest of activities. I went out for dinner the first night. Sitting with my friend chit chatting for hours. Far from a strenuous activity. Last night was hair night. Mom and my six week ritual of spending an entire evening in the hair salon…
I had a good weekend. I got my 6 hour online drivers insurance reduction course completed on Saturday. Had a really nice birthday brunch with my friend yesterday. Even consumed too many Bloody Mary and was slightly drunk. I managed to not only have zero falls this weekend, I also had zero bladder accidents. I stayed up past 9pm Friday and Saturday night and still got up my normal times in the morning. I think it is safe to say…
I’ve shared numerous times how I started a Go Fund Me for help getting a handicap van. I had some donations but it wasn’t moving most days. Since my birthday is coming up tomorrow I got something from Facebook about starting a fundraiser, so I did. I am so overwhelmed by the people that have donated to my fund. People I went to high school with, college, my family, my sorority sisters, my work friends over the years and friends…
It’s been a while, seems like months, but it’s only been a few weeks. I am finally getting back into my weekly routine. I’ve said this many times in my blogs, I need the stability of the routine. It helps me function and cope in each given week. When I’m out of routine I feel a little lost. My MS may even act up and become cumbersome. Might be part of the reason for my lethargic ways these last few…
Snap out of it!!! I was telling myself that for a week. I spent a week in pjs because I didn’t have the energy to get up and get dressed. I’ve been lethargic and tired and just morose. I was off of the steroids and knew it could be a side effect but it was bad. I saw the specialist that Tuesday and when we got to the list of my medication and Prozac she asked for the very first…
I have to admit, I never expected the handicap vehicle to be quite so much money. I’m glad at least when I started this journey I did start at the dealership first. I have a foundation from multiple sclerosis that is helping me but they certainly didn’t have enough funds for the entire van, or anywhere near it. The multiple sclerosis foundation only helps with the purchase of the conversion and they certainly don’t cover the full cost. I’ve done…
Going to see my neurologist, on my mind was questions of whether to stay on Ocrevus. I felt if I was still declining so much why be on a drug that can come with some serious side effects. Was the pros still out weighing the cons. I had two other drugs in mind Siponimod and Ibudilast. Both drugs are coming out for secondary progressive. My neuro shot down Siponimod because I was on Gilyenia and it is very similar to…
Why? I had to be in the city today for an early morning doctor appointment. Of course today it’s pouring. That means extra traffic and slower conditions leave earlier. That was my intention as well as my step dads wish but of course that isn’t what happened. This was all thanks to me and my wonderful multiple sclerosis issues. I got up fine. Got dressed took care of my dogs, all good. It was my shoes. I can’t wear my…
I have an appointment tomorrow morning in NYC with my MS specialist. I’m coming off a 3 day round of steroids to see if it was at all possible I could be having some type of relapse. I personally didn’t believe that’s what was happening, however I believe steroids can you give me a little bump up in the energy. My thought going into tomorrow is if I’m still deteriorating so much, why am I taking such a heavy duty…
