I’m very chipper this morning. I slept in. Both dogs let me sleep until 8:00. However, most importantly, my leg strength, or I should say what normal strength they have, came back. I stopped using the bathroom a million times throughout the night and I haven’t had any accidents since Thursday. The chances that I really did have a UTI and needed the antibiotics are pretty good. The doctor even said in two days you’ll know because your MS symptoms…
Ever since I was little girl, and my parents were divorced, my dad would call and make his phone calls to us like a little visit. He would see us every week on Sunday but he’d make sure the calls he made during the week felt like we were visiting too. Those phone calls however long they lasted, we always got his undivided attention. Those phone calls always felt like a visit from Dad. To this day I am now…
I’m wearing shorts on October 25th in New York. My windows are open in my house but there is no such thing as global warming. Oh please. This is crazy. https://www.accuweather.com/en/us/new-york-ny/10007/october-weather/349727. In case you actually care, everyday it’s been higher than normal this October. I always said I wanted weather like San Francisco 70 degrees and beautiful each day, guess I’m getting it except we get humidity. Yesterday was so humid and MS doesn’t like humid. It’s like starting five steps…
Good morning. I am not sure where my post is going to go today because I have no idea what I want to say. I have a headache again. I’ve been getting them more and more frequently. Luckily they have been going away with ibuprofen but I’m on medicine everyday for headache/migraines, why am I getting them? They were really bad when I was sick last week but I had one yesterday and now I have one today. I guess…
I am finally feeling a little better. I got some Musinex yesterday which helped but the pounding in my head finally stopped too. I still don’t feel great but the fog that swept over my head and body has mostly lifted. I must again say with warning to anyone on an immunosuppressive drug be smart around others with any kind of sickness. I’ve was on Tysabri for almost two years and Rituxan for over a year and a half and…
You might be asking, why does it matter that I’m taking Ocrevus and I have a cold? It’s important to remember what Ocrevus does. Ocrevus depletes B lymphocytes, a white blood cell in our immune system. Ocrevus is an autoimmune suppressing drug. Something as simple as a cold, may not have the same effect on me as it does the person I caught the cold from. For me, this cold has put me in an psuedo-MS attack. A pesuedo-attack is…
My dad sent me an interesting article yesterday. I couldn’t share the exact article but was able to find similar articles online. It is about the theory of catching a cold from someone, like I did from my daughter. It was very interesting because it talks how disease stars within NOT from external components. If your healthy inside you won’t every have to worry about those germs on the outside. Guess what, I, as well as many many others with a…
My favorite person came home from college last Thursday with a terrible cold. Poor thing was so sick. I wasn’t even sure it was just a cold. I thought she could perhaps have a sinus infection. However come Sunday the pressure in her head was somewhat better and she didn’t want to go to the doctor. I thought I was being careful around her so I didn’t get sick but alas, she shared my giant jug of water I always…
I found out last night, an old friend has cancer. It started as breast cancer and has spread to her bones. This is a woman I use to work with. She has the greatest sense of humor and her laugh is contagious. Life is very unfair sometimes. After I spoke with her, I was taking my dogs outside to their little dog run, and as I sat on my chairlift going down, I was grateful. I know that sounds horrible,…
I think it’s finally official, the fall has finally come to New York. For all those who don’t believe in global warming him, it was 77° in New York yesterday and it was warm and humid. It was gross. For people with multiple sclerosis, or at least me with multiple sclerosis, it’s the worst weather I can deal with. I wait every year to get through the summer and it just seem like this one never would end. My air…
