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Multiple sclerosis changed my life many times

Multiple sclerosis changed my life many times

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This blog was inspired by another MS blogger, who like me, has had this disease along time. Her positive spirit is always an inspiration. https://trippingthroughtreacle.com/2017/11/28/accept-adapt-succeed/ It wasn’t one time, it’s been many times. The first was the day I got my diagnosis. I didn’t understand what MS was. There wasn’t an internet yet I could search. I had to look it up in an old set of encyclopedias that were in my home. It had maybe two paragraphs in the…

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Multiple Sclerosis Spasticity

Multiple Sclerosis Spasticity

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What’s your worst and MS symptom, besides fatigue ?  At first I would’ve always answered the numbness, but eventually you get used to it. Not used to it in the sense that it feels normal, use to it in the sense that this is how it is. My hands and fingers are so numb all the time. I’ve lost all tactile feeling and sometimes can’t tell the difference  between an item that is wet or dry, cotton or silk and…

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Sometimes MS just sucks

Sometimes MS just sucks

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It’s a dreary day today. It’s raining outside. My apartments all dark except for the light of my iPad. That’s OK, I don’t have much going on except for packing. I’ve been talking so much about my new place I haven’t talked much about MS. I finally was able to see my physical therapist  to get some exercises for when I fall and there’s nothing around me to help me get up. I’m on the physical therapy maintenance program so…

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I am moving!!!

I am moving!!!

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I’m so excited to finally write this post. I’m moving!!! After 11 years in this apartment, 21 years in the same town, I’m leaving. My mom and step dad bought me a condo in a neighboring town. It has two bedrooms and two bathrooms. For the first time ever in my life I will have my own bathroom. I will have no more stairs. I am located right off the elevator. I have a pool, fitness room, and tennis court….

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It’s not multiple sclerosis, you’re just getting older

It’s not multiple sclerosis, you’re just getting older

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When I was at my doctor the other day, I was explaining some of my symptoms. I thought I possibly my optic neuritis was acting up. My very first MS symptoms was  optic neuritis. It was in my right eye and it was like a huge sunspot in my field of vision. I had it once very mildly in my left eye, same thing but much less intense. I believe I had one other issue in my right eye over the…

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Disease Modifying Therapies in MS, do you take them?

Disease Modifying Therapies in MS, do you take them?

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I received a comment yesterday, on an older blog, about my Ocrevus infusion. What I found interesting is she’s had multiple sclerosis for 36 years and she’s first going on a disease modifying therapy. First of all I have to say, 36 years within any DMT, that is amazing!!! I know other people like that or that have stopped taking any of the disease modifying therapy drugs for a variety of reasons. I never had that option. My multiple sclerosis…

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Biotin a year review

Biotin a year review

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If you’ve never read my blog before, I invite you to look through the search box and find my numerous posts on biotin. If you don’t want to take my word, this is an article from the web with the doctor who has been conducting the clinical studies on high dose biotin in multiple sclerosis. https://multiplesclerosisnewstoday.com/2017/05/09/medday-new-phase-3-trial-and-belief-in-biotin-potential-to-treat-progressive-ms-interview-with-frederic-sedel/ My MS doctor had read the notes on the clinical studies and started me on biotin back in December of 2016. With biotin being a…

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Neurologist check up day, NYC specialist

Neurologist check up day, NYC specialist

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Going to the neurologist are usually a bittersweet day. I really like my neurologist in the city, she is a wonderful doctor. I honestly couldn’t ask for more compassionate, caring and understanding for MS.  That being said, there’s limits to what could be done for me. Since seeing her regularly I’m on my third MS drug that I started back in September, which is Ocrevus.  I can say that I was on Rituxan prior to this and the changes only…

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Good morning sunshine

Good morning sunshine

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I’m very chipper this morning. I slept in. Both dogs let me sleep until 8:00. However, most importantly, my leg strength, or I should say what normal strength they have, came back. I stopped using the bathroom a million times throughout the night and I haven’t had any accidents since Thursday. The chances that I really did have a UTI and needed the antibiotics are pretty good. The doctor even said in two days you’ll know because your MS symptoms…

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Reach out and touch someone

Reach out and touch someone

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Ever since I was little girl, and my parents were divorced, my dad would call and make his phone calls to us like a little visit. He would see us every week on Sunday but he’d make sure the calls he made during the week felt like we were visiting too.  Those phone calls however long they lasted, we always got his undivided attention. Those phone calls always felt like a visit from Dad. To this day I am now…

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