OK moving should come with a gigantic warning, this was horrible. I thought I was so prepared. I wasn’t! I think moving would be hard for anybody, but adding multiple sclerosis to it is just a recipe for disaster. Unfortunately, in the morning my aid was running late so that left the beginning of the day on me. I had a couple things left to pack up. I didn’t think it was gonna be a big deal, IT WAS A…
I’ve had a blog about this in the past. This is from a course in miracles, and is and always will be my favorite lesson. It was always the hardest lesson for me learn because I am the queen of defense. When someone would say something to me, I always jump to my own defense. If I felt backed into a corner, I would claw my way out. Am I cured, absolutely not, but I’m a 1000 times better. The…
It’s the hump day. That middle of the week where it’s all downhill to Friday. I’ve been up since roughly 5:30 this morning. I’m exhausted. I couldn’t sleep. I should change that, I couldn’t fall back to sleep. Not sleeping is like an instant bad day with MS. I just wrote the ticket for the day. Not that I could’ve controlled it, I just know how my body is when I don’t sleep. My daughter was up all night studying…
I blog every day. However I have to admit, some days I have no idea what to say. I just start writing and whatever comes out, comes out. I ended up putting a title on it at the very end. Today is one of those days. I can write about packing and how tired I am, but I think I’ve expressed that I’m about 8 blog posts already. I made an appointment with my neurologist on Thursday to discuss what…
It’s been four days that I have owned the condo. However it’s only been three days that my new scooter has been in my condo. I have to admit it, life is a lot easier in the scooter. I’m getting tired doing the walking. Every day is a struggle and it’s just getting harder and harder. My steps are getting slower and slower. I do the simplest task and I am just completely wiped out. Then I have to walk…
Technically I don’t own it, but it’s mine. But I happy day it was. I’m sharing my picture which I normally would never do because it’s not a flattering shot at the smile on my face was pure joy. This is my mom and my stepdad with me. They were just as happy. It was exciting to go to the condo with my own set of keys and open the door and see this…. My own blank slate. It was…
BREAKING: Attempted bombing in NYC subway at Port Authority bus terminal on 42 & 8. The suspected perp is the only injury. My daughter was much calmer in her text to me this morning, There was a bombing on 42 street station so we couldn’t go through it. I know that there are over 8 million people living in NYC but I worry about mainly a handful of people. My daughter being the one I worry about the most. I…
The first snow is supposed to fall today in New York. I always loved the snow. I never liked driving in it but I loved to look at it. I love when it’s quiet and everything is white. You look outside the street the world just seems transformed and peaceful. Everything appears so different. However after that snow, what a mess. There are huge piles of snow because the plows. There are always parking spots that are taken because of…
One of the greatest things about my blog, is the feedback I’ve gotten from people that have known me for years. It’s the first time they really seen into my life on a daily basis. The truth is as soon as the how are you feeling question is asked, I immediately, say ok, how are you? I mean really what was I going to say to them, I had an accident today I peed my pants or or maybe I…
I always call it a scooter, but technically I guess it’s a wheelchair. I really wanted the hoverRounds MPV5. When I called it was over $4000 and of course my insurance wouldn’t cover it. My thinking was I was going to wait until I became Medicare eligible and get it then. Medicare pays for it. The problem with that outlook is first I’m not gonna be eligible for Medicare until, two years after the start of my disability which is…
