Yesterday I wrote about the seriousness of weakened chest muscles and multiple sclerosis I’m scared of this MS symptom. I haven’t seen my doctor yet but I received some advice from people that I thought I’d share that would also help. Purchase an Incentive Spirometer . There are many types of spirometers but this one is used to help increase patients lung function. 2. A humidifier A smart idea to keep moisture in the air to keep congestion as loose…
I’ve written about this before but it happened again yesterday and it really scared me. https://multipleexperiences.org/2017/01/23/multiple-sclerosis-serious-symptoms-respitory-issues/ I woke up not feeling well. I had this heavy feeling in my chest. Not like the MS hug symptom which is the tightening feeling through your chest like congestion, simple congestion in my chest. I just couldn’t produce a cough that would move the mucus up and out. I spent the whole day trying to cough, using my Doterra oils and drinking tea…
I received word this morning: I am pleased to inform you that your application has been selected by the committee for funding. Please see the attached letter for details and instructions for fulfillment of this grant. I was approved for the last grant for my handicap van. This was truly the difference between the van being still very difficult to pay for each month and being affordable. I have never been so nervous opening an email. I never doubted that…
It’s Valentine’s Day here which always marked 3 things for me: The lover’s or lack of one Holiday The weekend I moved into my first house with ex-husband The start of a major MS attack that lead to my diagnosis less than a week later Today marks 21 years ago that I was diagnosed with MS. Crazy!!! Almost half of my life I’ve spent with MS. It is hard to remember the times without the disease. Maybe that’s why I…
Wasn’t my finest dexterity day. My fine motor skills weren’t so fine today. I haven’t been to occupational therapy in a few weeks and I think it showed. It was rough today. I wanted to take the peg and tweezers and throw them across the room. It looks so harmless in the picture but we don’t use this huge tweezer. We use one of those tiny things you’d use to pluck your eyebrows. On a good day this is extremely…
Yesterday was an exciting day. My step dad took me to New Jersey to meet with a gentleman from Mobility Works. This was another handicap van dealership. What I liked about them is they had a much bigger selection of used vans. I now realized I had to get a used van so it was important to have choices and options. The company I was communicating with from the beginning just didn’t have that access to that kind of inventory….
I am due in March for my full dose infusion of Ocrevus. A process that has never run smoothly and has caused a lot of aggravation. https://multipleexperiences.org/2018/09/13/no-ocrevus-infusion-today/ https://multipleexperiences.org/2018/09/21/no-ocrevus-infusion-yet/ Those blogs were only my issues with the last time I had the infusion. I had issues every time my infusion was scheduled. Now I’m going back to Rituxan at the full dosage. Rituxan which is technically not approved for MS but I’d prefer to be on for safety reasons. I’ve explained…
Ok warning I’m going graphic here because I need to be honest and there is no other way. I have bladder and bowel control issues. For my bladder I take Toviaz which helps me not have accidents but when I have to go I have a very short window of time to make it to a bathroom. Without this medicine I have NO window of time. My bowels are completely different. I can’t take anything and have no control over…
I thought I’d write a blog on the update on my van. Unfortunately, I did not get as much in grants as I was hoping for which was somewhat disheartening. It was my own fault because I just got a number in my head that was delusional. I was able to secure $5,300 in grants from the MS Foundationhttps://msfocus.org/ and the MS Hope Foundationhttp://www.mshopefoundation.org/. I was denied from the Chive Charity https://chivecharities.org/ and the National Multiple Sclerosis Society doesn’t do…
I never thought at the age of 47 this would be my life yet I remember being scared when I was diagnosed of being in a wheelchair. I knew what multiple sclerosis could bring about and I feared that when I hit the 10 year mark everything would go downhill rapidly. That wasn’t the case because there were medication developed that helped to slow down the MS progression and more and more have been developed. My life took on a…
