Yesterday during physical therapy the first thing we did was put me on the floor to get up. I just knew I had the strength to do it at this time and the first time I got myself up fairly quickly. So we did it for a second time. This time was harder, but I still managed to get myself up. My physical therapist said I can give you pointers but nobody knows their body better than you. One thing…
It’s 9am and I’ve already showered, worked out for 54 minutes, took care of my dogs and spoke with my mom. I’ve been up since roughly 6 when my right foot started twitching. Even though this video was taken when I was awake and in my chair, it is exactly what happens anytime and anyplace my leg twitches. Now you tell me, could you sleep through that? After the first 5-10 times it actually starts to hurt almost. My foot…
I can’t say enough good things about this guy. He is just a person size package of warmth and healing. It is nice to be the only one the therapist is focused on during an hour session as well. Even though my occupational therapist was from the same company, he was no where near the caliber of my physical therapist. My hour session were never an hour more like 30-40 minutes at best. I wasn’t complaining. He was more like…
I figured something out once again out of dumb luck. Yesterday morning when I was getting out of bed, I actually had a slide onto the floor. When I wake up sometimes I have major spasms and my legs just don’t bend the right way. Yesterday was one of those days. Sometimes I’m able to get myself up without needing to actually bend my legs, however yesterday I wasn’t so lucky. It was first thing in the morning too and…
I try to do the safe things, I really do. Even when I’m trying to be at my safest I still have issues. Let’s take last night as an example. My dad called as I was about to go to the ladies room, so I told him I’d call him back in a minute. On my way back, i safely maneuver my wheelchair directly in front of my comfy chair to make my transfer. Easy and safe. As I was…
It’s 48 degrees out and I’m in a complete sweat. I haven’t even worked out yet because I have therapy this morning. I am sitting around waiting for my therapist. I have opened my windows but the breeze wasn’t enough, I just turned on my fan. I’m dressed in a thin pant and a t-shirt. WTF!!!! I just got a call my therapist is running late, thank goodness. Hopefully I can get myself cooled down before he gets here otherwise…
My brother does this every year and every year with me in mind. Please consider donating to a cause that is near and dear to me and my family plus too many other suffers. https://mssociety.donordrive.com/index.cfm?fuseaction=donorDrive.participant&participantID=16843&cmr=5282CE675756&language=en Dear friends, Each year for the last 12, I’ve raised funds for BikeMS, to directly help those affected by this terrible disease funding research by the MS Society. This year, I’m falling short in my fundraising goal. This is not surprising – people are out…
I truly want to write happy, uplifting blogs but I haven’t been able to do that lately. For every good day I’ve been having a few rough days following. It seems like I’ve been having more rough days than good days. Each time I think I’m through the worst of it, like my infusion, something seems to happen. If it is a tough night sleeping or a great night sleeping, I’m waking up tired. Doesn’t seem to matter. Today I…
I wrote this blog post on November 7, 2016. Almost 4 years ago to the day. I was originally going to just link it in this post when I realized I would probably be repeating the same general things. Obviously Covid has made my MS daily activities null and void but I’m not complaining. Truthfully my MS is much different 4 years later. I’m mostly in a wheelchair now. I’m in a new place, not my apartment anymore. Things are…
First let me say it is difficult to write my blog in my current position. Minx likes to snuggle in my neck. I am not complaining because they are so cute. Plus I’m not having a good day and I need a lot of love. I woke up tired and with a migraine. Not a good combination. The weather in New York is not only warm but humid. Weather, Infusion or just fatigue. I was doing my MS gym exercises…
