I was fatigued yesterday doing my normal routine in the morning which involves cleaning up after my dogs, feeding them and morning grooming for me. I had a goal to workout. I knew I should have waited a bit since i was already fatigued but I wanted to get it over with. On top of this my stomach was bothering me. I know better for all these reasons but I pushed it anyway. Within 10 minutes of my chair Zumba…
It’s Saturday which means I don’t have my aid. I love my aid, I truly do. I’m so grateful for everything she does but I look forward to my weekends and my alone time. Is that bad? It is nice to get out of bed whenever I want and get dressed whenever I want. Sometimes I even stay in pajamas all day. My week is still busy enough to tire me out. It doesn’t take much. I like to watch…
I went into the gym in my building this week. It isn’t a large gym but they have more than enough to get a good workout. I have been trying to do some weight lifting exercises in my condo over the weekend. The problem is I’m exhausting myself and my arms and I’m alone. It is causing problems for me when I’m trying to get around. Not the safest thing for someone with MS to be doing. I decided to…
My plans for today got ruined thanks to stomach issues. Since I can’t always control the backend chute I couldn’t risk having an accident outside my home. I was supposed to have mahjong today and I’m so bummed I had to cancel. I love playing and look forward to it each week. This would have been very welcome on a Monday replacing physical therapy. I have no problems skipping that. I started today with an “accident”. Right when my aid…
I was talking this morning to my step sister about MS attacks or relapses if you choose. We were talking about someone undiagnosed for years therefore not on any MS disease modification medicine. I told her how lucky I was that I was quickly diagnosed but more so that way back then there was ANY medicine for MS. I strongly believe that if I wasn’t on some kind of medicine I would have been completely disabled within a window of…
I say this all the time, you can’t plan for things because you just don’t know. What doesn’t cause problems one day may be a gigantic obstacle the next day. One day you feel fine the next you can’t get out of bed. People around me always say it’s the weather or may say maybe you’re getting sick, I just know it’s the nature of the disease. A good example is when I was playing mahjong. I’ve had issues many…
After my upsetting week last week following weight watchers I choose to see my weight differently. I asked the universe for help. I immediately got to my life coach but then I got an email from my cousin. It was actually her second email regarding a book called <br /> . My cousin’s first email was explaining about the book before she knew I was struggling. The second email was following my blog post where she was more insistent that…
I’ve been having such problems again going to the bathroom. This is an issue I’ve struggled with for years but continues to to get worse. Every time I think I found something that works it eventually stops working. My main problem is twofold. I can’t push and I can’t hold. Meaning I can’t get it out and if it’s coming out I can’t hold it in and I’m going to have an accident. Sorry to be so graphic but is…
So I was at my hairdresser yesterday, an appointment I never miss. I was alone with my van and wasn’t the least bit concerned. I knew I needed my walker not my scooter to go in so my aid and I had that in my car before I went. I was even prepared and got my other walker out of storage so I didn’t have to worry about bringing it back into my condo. I meet my mom at the…
I could have spent the day in bed. That’s the one thing two dogs and a nursing aid that comes early in the morning prevents. Not that my aid would mind or wouldn’t help me but my dogs would drive me crazy running between her and me. I can’t shake the exhaustion in the morning and the fatigue in the evening yet. I actually think this started from my rituxan infusion back in mid March, I believe I said I…
