Browsed by
Tag: Ms progression

Where is the real October weather

Where is the real October weather

Comments 3 comments

I’m wearing shorts on October 25th in New York. My windows are open in my house but there is no such thing as global warming. Oh please. This is crazy. https://www.accuweather.com/en/us/new-york-ny/10007/october-weather/349727. In case you actually care, everyday it’s been higher than normal this October. I always said I wanted weather like San Francisco 70 degrees and beautiful each day, guess I’m getting it except we get humidity. Yesterday was so humid and MS doesn’t like humid. It’s like starting five steps…

Read More Read More

Oh yeah I remember another manic Monday

Oh yeah I remember another manic Monday

Comments 3 comments

Good morning. I am not sure where my post is going to go today because I have no idea what I want to say. I have a headache again. I’ve been getting them more and more frequently. Luckily they have been going away with ibuprofen but I’m on medicine everyday for headache/migraines, why am I getting them? They were really bad when I was sick last week but I had one yesterday and now I have one today. I guess…

Read More Read More

When to go into a wheelchair?

When to go into a wheelchair?

Comments 8 comments

There is only one answer to this, when you absolutely have to!!! Stay on your feet as long as you can. Once you’re in a wheelchair full time your legs will weaken making walking more and more difficult. I know this all but here’s my problem, walking is getting more and more difficult for me. I have both good and bad days but let’s say I go to the small grocery store and walk with my rollator, I can walk…

Read More Read More

The way we were…

The way we were…

Comments 3 comments

I think for anyone that has had a chronic illness for any length of time has sat and remembered what it was like before the illness. Or at least what it was like before it got really bad. We remember when we used to dance, run, or have any  exorbitant amount of energy. We remember when we taught our child maybe to ice skate or ride a bike. Maybe you remember Sunday afternoon hikes up the mountain. All these wonderful…

Read More Read More

Thursday dilemma

Thursday dilemma

Comments 3 comments

Woke up to my phone ringing at 6:45. Thinking that it could be my daughter, I rolled to the floor instead of fighting with my stomach and arm muscles to put me in a sitting up position. By the time I got to the phone the answering machine picked up but my phone announces who is calling so I knew it wasn’t my daughter.  They didn’t leave a message but by the name, I realized it was the aide they…

Read More Read More

No, I’m not lucky

No, I’m not lucky

Comments 4 comments

There’s a reason I have an aide for eight hours a day. There’s a reason I don’t work anymore. Sometimes I feel like I’m running a scam, that I should be working or I don’t need an aide eight hours a day. Especially when someone says lucky you. Let me explain something to you and myself, I’m not a lucky girl.  I’m not a lucky girl that I’m on full disability and don’t work. I’m not a lucky girl that…

Read More Read More

This weeks MS symptoms

This weeks MS symptoms

Comments 6 comments

These aren’t new symptoms they come and go. I just wish I knew why. I guess I wish I knew why with a lot of MS related things. Spasticity has been bad this week. I woke up Monday morning, or I should say didn’t sleep well Sunday night from pain. I always describe the spasticity in my back as if someone was twisting my tendons and muscles like you would spaghetti onto a fork, that’s how it feels. I ended up…

Read More Read More

My neurologist check up 9/2017

My neurologist check up 9/2017

Comments 1 comment

Technically I’ve had Multiple Sclerosis for 20 years at this point. I had my first case of optic neuritis in the summer of 1997 but I wasn’t officially diagnosed until February 1998. Doesn’t really matter at this stage of the game but it is why, like I said in my post yesterday, I don’t prepare for my neurologist appointments. Yesterday I saw my neurologist that diagnosed me in 1998. I remember back in the beginning at my check ups I’d…

Read More Read More

Preparing for your neurologist appointment

Preparing for your neurologist appointment

Comments 3 comments

There are steps recommended to prepare for your doctor appointment. Write down any new symptoms you’ve been experiencing if this is your ongoing doctor or all symptoms if this is a new doctor. Bring any test results you’ve received from any other doctors even if you don’t think they aren’t relevant. Have a list of all the medicine you are currently taking which should include anything non-prescription as well. Make a list of you questions or concerns before hand. If…

Read More Read More

Is one of the medicines working?

Is one of the medicines working?

Comments 3 comments

Yesterday I wanted to write a post about which medicines are working. I woke up yesterday feeling great, great as far as a good MS day. I worked out Saturday, Sunday and Monday having no pain in my arm or shoulder.  What was more amazing was my stamina. I was able to get through each workout. Even though I napped all three days, I’ve been napping most afternoons when I haven’t worked out Anyway. What I noticed is my legs…

Read More Read More

Verified by MonsterInsights