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The horrible weekend tale. Multiple Sclerosis at it’s worst

The horrible weekend tale. Multiple Sclerosis at it’s worst

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What I don’t understand is how are you supposed to prevent things from happening? If there was something I could’ve done, I would’ve done it. What is a person with a disability supposed to do when they are alone? I just can’t understand how this situation not only could’ve been prevented but could’ve been done with any dignity whatsoever. This is the part of multiple sclerosis that I find so unfair. The embarrassment and the shame that I felt is…

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Misheard song lyrics

Misheard song lyrics

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I could write about my horrific Saturday night and Sunday morning I will write about it, eventually. I honestly am completely traumatized by the events that took placed. Yet I will tell the tale because i promised when I started this blog complete honesty. However I am just not ready to retake the tale yet. That’s how bad it was. So instead I’m going to leave you with a video that my dad sent me Perfect video for a great…

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A wheelchair function helped me off the floor

A wheelchair function helped me off the floor

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My daughter is packing because she’s leaving today not tomorrow. My aide of three years had her last day with me yesterday. My new aide starts Monday and is working 11-7. Not exactly the hours I wanted to change them too but it is still is better than my original hours. I can now do my normal morning routine. I prefer working out when no one is around. I always did. Now I’ll have the morning to myself. What could…

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Botox for Bladder Incontinence

Botox for Bladder Incontinence

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I had a comment yesterday by Mary suggesting Botox for my many trips and accidents with the bathroom the other night. Waking up to use the bathroom all night long. I’ve heard of this treatment option but I’ve never looked into it for the one thing she mentioned, you have to self catheterize. Patty concurred with that comment this morning too. However, Mary started me thinking. I would love not having accidents anymore. I would love to stop worrying every…

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Waking up to use the bathroom all night long

Waking up to use the bathroom all night long

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You know you didn’t sleep well when it’s 8:30 in the morning and your Apple Watch already has 6 hours of standing. I wasn’t feeling good this weekend, maybe the start of a cold. I’m not sneezing but I feel congested especially in my chest. I’ve once again resorted to my oregano oil and breath oils. I feel slightly better today but a good nights sleep would have certainly helped. That did not happen. Instead I was up every two…

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Singing the song It Wasn’t Me by Shaggy

Singing the song It Wasn’t Me by Shaggy

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Not one of my better nights sleeping. I think I was up most of the night. Everything hurts. I hate that feeling. My headache isn’t helping either. I woke up sneezing so I immediately guzzled down some oregano oil. I just feel blah. I worked out and even that didn’t help. Usually bringing on a sweat helps a little but not today. I was disappointed in my heart rate and felt it didn’t register accurately. That in turn made me…

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I’m taking a poll on napping

I’m taking a poll on napping

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Amazon’s been promoting shark week on discovery channel for a while now. However, now the promo is Tyson versus jaws, rumble on the reef. Is this really what we’ve lowered ourselves to? I actually like shark week. They’ve actually had some really interesting programs. I think my stepdad’s told me it is the longest running cable event in history. Do really need to be promoting it alongside Mike Tyson in his boxing gloves? OK, maybe it’s just me. It is…

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End of summer marks next Rituxan infusion

End of summer marks next Rituxan infusion

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Is summer over yet? I’m ready to put on my oversized sweatshirt. It doesn’t matter that I stay indoors with AC the humidity penetrates to my bones. I know this question was asked by Steve over at MSich Chronicles http://msichchronicles.blog/2020/07/29/evansville-heat/, but how do people with MS live in hot, humid places? I’m in countdown mode until I can officially say its Fall. Right around the time of my next Rituxan infusion. For any new readers, I switched back to Rituxan…

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Moments of my weekend

Moments of my weekend

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This was a weekend of great ideas and completely mindless moments. I thought I’d share them all for you: I pulled a muscle in my butt. In my stronger leg. I was stretching in a simple position. As soon as I pulled the leg up, I felt it. No big deal except, this is normally the favored leg to push myself up to stand with. That move is freaking painful. However, I kind of don’t have a choice. It has…

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Really good multiple sclerosis research news

Really good multiple sclerosis research news

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This is the best news article I’ve come along in a long time. It was titled: ‘Holy Grail’ MS discovery could prevent disability using diabetes drug For the first time in ages this talks about stopping the disability not reducing relapses. https://www.sciencefocus.com/news/holy-grail-ms-discovery-could-prevent-disability-using-diabetes-drug/ In MS, the protective coating surrounding nerves known as myelin is damaged causing them to become less energy efficient which makes them vulnerable to further damage and causes disability over time, the MS Society said. < p style=”box-sizing: inherit; margin:…

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