Not fatigued, yet, but I have physical therapy so give it time. The weather is so wacky and I think that’s why. One day it’s cold, rainy 65 degrees and I’m wearing a sweatshirt. The next day it’s 75 and humid and I’m in shorts. My hair is frizzy again in the middle of October. Amazingly I haven’t had migraines. An absolute blessing. I haven’t had one in at least a month (knock on wood). I’d think with these wacky…
I’ve been looking to get funding for a handicap vehicle for the past few months. It hasn’t gone as well as i was hoping. On top of this my own car is a lease which isn’t over until July 2019. My mother kind of yelled at me for getting ideas in my head prematurely. She isn’t wrong but what I needed to explain to my mom that it wasn’t so much the idea of the handicap vehicle it was the…
https://www.facebook.com/donate/249027742420824/ Why We Want to Create a World Free of MS 9! years ago, when I said I wanted to ride 30 Miles for an MS Bikeathon, my step-but-real sister Jamie said “I can barely walk 300 feet – why do they do these events that people with MS could never do?” I said “Maybe it’s because we hope someday you’ll be able to.” I have done this event for 9 years now. Life is harder for Jamie, but I’m…
Does the change of seasons affect your MS symptoms? I know that the actual seasons affect symptoms like the heat of summer or the cold of winter but I mean the transition between the seasons. I’ve had a tough time with my walking lately and with fatigue. My physical therapist says season change. I found this article online http://tamingmultiplesclerosis.com/multiplesclerosis-seasonchangesarticle.html. Usually I feel effects of season changes maybe from winter to spring. It’s unusual for me to feel this way from…
Sometimes it is overwhelming dealing with a chronic illness and navigating through daily life. I know I’ve lived there. I use to unleash it all on my mom. She has so much empathy and I adore her but she doesn’t have multiple sclerosis and she didn’t, she couldn’t, fully understand. I was sad for a long time until I changed my thinking and changed my perception on life. I have a life coach that helps me stay on track and…
I see my neuro who I’ve been seeing now for over 20 years. These appointments always seem to upset me. Not the doctor, the reality of my disease. It isn’t that I don’t understand multiple sclerosis or I don’t know the current research, I like to think I am somewhat current on the disease. It is more going to a doctor and leaving with the knowledge that your not going to get better. It’s very silly actually because I know…
Good morning. I’m happy to report I am finally feeling better. I actually started feeling a little better on Saturday. I went swimming and was able to still get around my condo without having that bone feeling fatigue. So it took about 6 days for me to start feeling better. By Sunday I was good. It was a tough week but I don’t have to worry about the infusion again until March. I can handle that. I remember when I…
Fatigue!!!! That’s the only word I could use. I’ve been exhausted but it’s been in my muscles too. It’s been hard just getting around my condo because of the muscle fatigue. I almost went into my scooter last night. Every step is difficult to take not only in my legs but in my arms holding me up with the walker. I don’t remember feeling this way last time but last time they messed up and split my dose. This was…
Wouldn’t be me if I wasn’t extreme. Vegan to Keto, that’s extreme. Why would I even think about this? A movie called the Magic Pill on Netflix. Ironically, it was watching Forks over Knives on Netflix that I became Vegan. My diet isn’t working anymore and hasn’t been working. I’ve been maintaining a ten pound unexplained weight gain following a plant-based diet and tracking on weight watchers. This past week I put on an additional 4 pounds. I don’t eat…
https://www.mstrust.org.uk/news/views-and-comments/neuropathic-pain-invisible-illness Neuropathic pain affects up to 25% of people with MS. It is a consequence of damage to the myelin that surrounds nerves in the central nervous system. Very commonly the pain is not due to physical damage to the nerve but as a result of a physiological change within it. This means that even when the initial cause is treated or removed, the nerve remains permanently changed and the resulting painful symptoms can become a long-term problem. Once present,…
