Today is the first day I woke up not feeling tired. It was such a wonderful feeling. I haven’t had that in so long. I can’t say how the rest of my day will go but for all my bitching lately it was nice to start off my blog with some good news. I still canceled playing mahjong today. Unfortunately I knew that I probably wouldn’t have the stamina to last too long. However I still worked out. I even…
What can I say. I’ve been like a lump on a couch. I showered today, go me!! I’m exhausted ?. I was exhausted when I woke up. My eyes feel swollen after I slept for almost 12 hours. How much more can one person say about fatigue? I’ve done nothing so I have nothing to blog about. I can tell you I’m tired of people saying me too. Anyone with multiple sclerosis or chronic illness knows there is a huge…
Still unfortunately feeling shitty. Once again canceling activities. The good news is I’m sleeping better, that really helps. Of course I’m a few weeks away from my infusion of Rituxan which had issues last time.Whether the issues were actually caused by the infusion or not, we still don’t know, but my concern is there to say the least. https://multipleexperiences.org/2019/09/17/blisters-on-breast/. Not to mention you always feel somewhat fatigued after you do the infusion so the whole thing has bad timing. I…
I use to love being on the boat with my dad. I loved the water being free like that with the wind blowing in your hair. If you love the water you know that feeling I’m talking about. I missed that feeling for a long time until I got on the back of a motorcycle. God I loved being on that motorcycle. This was the one thing I only did with one ex boyfriend and something I’ll never do again….
22 years ago started my second multiple sclerosis relapse that lead to my diagnosis five days later. My first was optic neuritis but by itself had no name. It was 6 months later on Valentine’s Day weekend when I moved into my new house and my left side started to go numb. What started in my foot quickly traveled through my entire left side up to my face. I had difficulty walking, muscle atrophy and numbness that would never fully…
Since I’ve been suffering through another extreme bout of MS fatigue I tried to figure out what I could do for myself. I know I was out of my prescription Adderall for a couple days, but could that really bring on fatigue so extreme? I don’t believe it was working that well plus this fatigue has been coming on for weeks. I’ve been feeling run down long before the last few days. I was denied by my insurance Provigil, which…
Back to feeling rundown again. Spent yesterday morning in bed with a migraine. Migraine is gone but I’m still exhausted. I went into bed before 9pm yesterday and slept straight through until 4:30am. That is a record. I went back to sleep and woke up at 8:44. I had to take my car in first thing this morning otherwise I might have spent another morning in bed. This is a rough feeling as anyone with multiple sclerosis can tell you….
Everyone has been talking about Dr. Pimple Popper so I finally tried it out. Everything everyone said was right, it is so gross but you can’t look away. I watch and my stomach is quesy yet I put on another episode. Makes me not so worried about my fungus that doesn’t hurt and keeps well hidden by socks. Some of the things people live with is unbelievable. I almost appreciate having multiple sclerosis which has worldwide recognition for research and…
I have to say things in my family have been sad. Bad news received about a loved ones health has hit everyone hard. It puts having multiple sclerosis in its respected place. A place that has always helped me deal with my disease on a more positive level. I’m here!!! I didn’t receive a death sentence when I was diagnosed with multiple sclerosis. My disease could be difficult but I could still live a very rewarding life. I’m coming up…
I had my first physical therapy appointment of the year yesterday after my occupational therapy. I knew I’d be exhausted after but I completely underestimated how exhausted I’d actually be. It took me hours to be able to move out of my chair when I got home. Hours!!!! I’m working with a new therapist. She is very nice but she is going to be tough. No different then the other girls I’ve worked with but the difference is she is…
