I have nothing left this week. I’m just drained of all my energy. No spoons left, no reserve and no choice. We are picking up my daughter’s new car this morning so I’m up, dressed and ready to go again. I am sure it will be at least an hour signing all the paperwork and driving myself home again. Tonight is a family dinner before she leaves for school. I need a down day, I need a few down days….
My daughter is leaving to go back to school on Sunday. Her boyfriend is a mechanic and took her car for an oil change, tire rotation and to look at the transmission which has been giving her problems for a bit. Never really telling anyone else that the problem existed, after she got the car back, the problem was worse. With her about to leave for school I made her take her car in to transmission looked at. Sure enough…
I love where I live. I’m sure I’ve said this 1000 times but I just have to repeat it again. I love everything about my condo. I love waking up with the sun shining into my room and standing up seeing the sun glistening off the water in the channel. I love seeing the boats. I love watching out my living room window out to the balcony seeing the whole open ocean both when it’s calm in the morning or…
I was told about an underwater MP3 player I could wear while swimming by my friend Dix over at https://www.wheniswimfoundation.com/. Originally he told me about the Finis Duo which I bought but never used. I returned it for the sole reason it was a little pricey and I saw something that cost a lot less. I wanted to try that first. I bought the SYRYN which was half the price. . The reviews were even better than the Finis. The…
My next infusion is supposed to be in a few weeks for the full dosage of Rituxan. I called the infusion place that does the schedule for my medicine yesterday hoping to get a jump on things and avoid any issues. This time, for the first time, there shouldn’t be any problems. I haven’t had any insurance changes, Rituxan has already been approved from the last time and I’ve been getting my infusion with this place for a few years…
My poor daughter is also plagued with migraines and she had a terrible one yesterday. She was supposed to cover someone at work but couldn’t make it in. Her migraines are made worse by her cochlear implants. If she catches them in time and takes aspirin sometimes they could be avoided. She couldn’t yesterday. When this happens the only thing she could do is take off her Cochlear’s and sleep. The cochlear implants cause additional pressure to her head making…
Today is mahjong. I’m very excited I didn’t play last week. I’ve been very focused in the gym working my core to help me with the forward and backward movements in the game. I can normally make it through 3 1/2 hours of play but I still have issues and fatigue by the end. It isn’t as bad as the beginning when I first started to play. It is amazing what will fatigue the body. If I do a workout…
Back to the gastroenterologist this morning. Unfortunately the medicine Linzess in the current dosage is not doing the job. I’m on the middle dose of 145mg. He wanted to start me at the highest dose and I got nervous. My bad!!!! It seemed to work at first, I was having a bowel movement daily but they became smaller and smaller until it was virtually nothing. Then it stopped altogether. Just stopped. I’m back to not going again. I haven’t for…
Had a great morning, slept late. That is always a good thing. I’ve been tired. I’m always tired, that isn’t anything new. I just needed to sleep. I went into bed at 9 was asleep by 9:30 and slept until after 9AM. That is a good night. I went swimming right after I got up this morning. That is my Fitbit readout. Not a bad workout. Not 100% sure how the lengths are measured but I’ll take a 68 with…
Busy, busy, busy. A fun but busy weekend indeed which is slightly unusual for me. Friday, I was able to babysit, more like keep company, with a little girl who is as sweet as they come and like a niece to me. We had a great day and did so much. We went in the pool, out for lunch, bathed both dogs and even made cookies. It was a jammed packed day and a lot of fun. My dogs were…
