Since yesterday didn’t quite work out as I wanted I’m trying again today. Got my fur babies close. I haven’t worked out since Monday. Giving my body the break it needs. Hopefully I’ll be able to sleep more and the phone won’t ring all day like it did yesterday. This is all part of having MS and I understand that. It is a difficult part of the disease but I’m doing what I can. I’m a MS warrior like so…
Writing this from the comfort of my bed. I am hoping a day in bed recharged my batteries. I know it might not help but I am going to stay in bed anyway. Unfortunately I was woken up at 8am from my security booth with another aid appearing at my house. Made no sense and was severely aggravated by the mistake. After 10 phone calls the situation was handled but I had to be woken up to fix it all….
I’m just having a tough couple of days. I am just so tired and my body isn’t recovering yet. I hate this feeling but I can’t even complain. I haven’t felt like this in a long, long time when my energy is drained for so many days in a row. It is a horrible feeling but I do have the means now to make things easier for me. Yesterday I did manage to do my Turbo Jam Beachbody workout. I…
I have nothing left this week. I’m just drained of all my energy. No spoons left, no reserve and no choice. We are picking up my daughter’s new car this morning so I’m up, dressed and ready to go again. I am sure it will be at least an hour signing all the paperwork and driving myself home again. Tonight is a family dinner before she leaves for school. I need a down day, I need a few down days….
My daughter is leaving to go back to school on Sunday. Her boyfriend is a mechanic and took her car for an oil change, tire rotation and to look at the transmission which has been giving her problems for a bit. Never really telling anyone else that the problem existed, after she got the car back, the problem was worse. With her about to leave for school I made her take her car in to transmission looked at. Sure enough…
I love where I live. I’m sure I’ve said this 1000 times but I just have to repeat it again. I love everything about my condo. I love waking up with the sun shining into my room and standing up seeing the sun glistening off the water in the channel. I love seeing the boats. I love watching out my living room window out to the balcony seeing the whole open ocean both when it’s calm in the morning or…
I was told about an underwater MP3 player I could wear while swimming by my friend Dix over at https://www.wheniswimfoundation.com/. Originally he told me about the Finis Duo which I bought but never used. I returned it for the sole reason it was a little pricey and I saw something that cost a lot less. I wanted to try that first. I bought the SYRYN which was half the price. . The reviews were even better than the Finis. The…
My next infusion is supposed to be in a few weeks for the full dosage of Rituxan. I called the infusion place that does the schedule for my medicine yesterday hoping to get a jump on things and avoid any issues. This time, for the first time, there shouldn’t be any problems. I haven’t had any insurance changes, Rituxan has already been approved from the last time and I’ve been getting my infusion with this place for a few years…
My poor daughter is also plagued with migraines and she had a terrible one yesterday. She was supposed to cover someone at work but couldn’t make it in. Her migraines are made worse by her cochlear implants. If she catches them in time and takes aspirin sometimes they could be avoided. She couldn’t yesterday. When this happens the only thing she could do is take off her Cochlear’s and sleep. The cochlear implants cause additional pressure to her head making…
Today is mahjong. I’m very excited I didn’t play last week. I’ve been very focused in the gym working my core to help me with the forward and backward movements in the game. I can normally make it through 3 1/2 hours of play but I still have issues and fatigue by the end. It isn’t as bad as the beginning when I first started to play. It is amazing what will fatigue the body. If I do a workout…
