I can’t imagine my life without this van. It was time to be in a wheelchair and I didn’t have the means to accomplish this. It took a long time and help from so many people. I still can’t thank them enough. I have a life again and I can go places without everyone worrying; how will I get in, will I be able to get there, will it be too much etc. This van wasn’t only great for me,…
Old Mc Jamie had a twitch eieio with a twitch twitch here and a twitch twitch there here a twitch there a twitch everywhere a twitch twitch Old Mc Jamie has a twitch eieio. It made for a rough night of sleep. It was one of those nights where my medicine just didn’t help through the night. I twitch which is both annoying and uncomfortable and prevents me from falling asleep. I also have my big toe symptom where it…
I have to do bloodwork this morning. You think I’d be a lot less needle phobic with the amount of shots I’ve received over the years but I’m really not. I’ve from the earliest medicine for MS. I’ve been on Avonex, Betaseron, Rebif and even Copaxone. These are all medicines that required weekly or even daily shots that I had to learn to administer myself. For the first 12 years of my journey I had to do these. When Gilenya…
And we’re back, it’s Monday again, doesn’t it seem to happen so fast? I just find the weekends go so quick and I don’t even work anymore. I’m not really complaining because each day is similar for me but on the weekends I’m kind of my own which I generally come to appreciate. I won’t lie, the weekends can be very difficult because no one is usually here. So I lie very very low and usually do very little. I…
My five minutes of fame. ?. My little write up about how I’ve benefited from the MS Foundation https://msfocus.org/ came out this month. My writing was split on two pages so it was difficult to picture for you to read but I did my best. Pretty neat. First time my words and certainly my picture has ever been published. Btw I’m Jamie from Freeport just in case you missed that part ?
You might think that’s great you had no active lesions on your MRI, no new lesions either. Yes, it is but that is a Relapsing Remitting MS signifier that my main MS drug, Rituxan, is suppose to prevent. It is working which is definitely great. The reason I’m not celebrating is because this MRI result is only part of my picture with MS. There is another part, it is thought of as Secondary Progressive MS. Secondary progressive MS (SPMS) is…
July is ending today. I made it through the month. Only one more long month of summer to go and I should be good. It’s just these two months that are difficult for me the other 10 I can get through. However I’m still jealous of my little sister in San Francisco with that perfect mid 70’s weather year round. That would be perfect. Anyway I can celebrate successfully navigating another month of July. This was an uneventful month which…
I did something new. I bought one of Oprah and Deepak older 21 day meditations. I bought shedding the weight; mind, body and spirit. They say when you are holding onto weight you are usually holding on to something else. I’m trying to balance things again. I did break my own pact and stepped on the scale this weekend but I didn’t let it upset me. That’s big. I use to meditate at 6pm when my house was quiet but…
Was in bed until 11am today. Woke up with a nasty migraine. I took my migraine medicine first thing this morning and got right back under the covers. My aid was so helpful first giving me a massage and then taking care of the dogs for me. Although after they ate they came back to bed themselves. They love snuggling with mommy ?. I woke up showered and actually did Zumba in my chair because I wanted to do something…
A great way to spend the day. I have an MRI of the head and cervical spine with and without contrast. This is a long test and I have to be there 45 minutes BEFORE my appointment on top of the long test. That is for them to put in a line making it easier to add the dye during the test. Since I’m known for collapsing veins during this part, I’ll be there early. Neither of my neurologist expect…
