I did something new. I bought one of Oprah and Deepak older 21 day meditations. I bought shedding the weight; mind, body and spirit. They say when you are holding onto weight you are usually holding on to something else. I’m trying to balance things again. I did break my own pact and stepped on the scale this weekend but I didn’t let it upset me. That’s big. I use to meditate at 6pm when my house was quiet but…
Was in bed until 11am today. Woke up with a nasty migraine. I took my migraine medicine first thing this morning and got right back under the covers. My aid was so helpful first giving me a massage and then taking care of the dogs for me. Although after they ate they came back to bed themselves. They love snuggling with mommy 😆. I woke up showered and actually did Zumba in my chair because I wanted to do something…
A great way to spend the day. I have an MRI of the head and cervical spine with and without contrast. This is a long test and I have to be there 45 minutes BEFORE my appointment on top of the long test. That is for them to put in a line making it easier to add the dye during the test. Since I’m known for collapsing veins during this part, I’ll be there early. Neither of my neurologist expect…
Fear of Missing Out (FOMO) this was a good topic of conversation last night at dinner with my good friend Sharon. Ten years ago we’d push ourselves to go out ever night we could for that fear of missing out. Nothing was worse than hearing the next day about an amazing night that you weren’t a part of, even worse were the inside jokes that came from that one night you missed. Sharon said it best, she let go of…
Yesterday was a fun day. My mahjong friends came by me and we played mahjong all afternoon. My mom came later to teach us how to form a hand faster. It was just a nice day. We played in my condo meeting room. It is this huge room with a kitchen, one large bookshelf filled with books, tons of chairs and one long table because the only time this room is used is for condo meetings twice a year. It…
I woke this morning with my twitches. It started up by my pelvic/hip area on the left side getting this feeling of an electric pulse. That pulse then traveled down my leg causing instant paralysis and flexing all the way to my toe. Then it stopped and released until the next pulse hit. They came every 10 minutes until I finally got up because sleeping wasn’t happening anymore. I take all my medicine at night so I can stop any…
Do you get those weird symptoms from MS? I’ve blogged about them before but sometimes they come out of nowhere and they are so annoying. Today it is like my bra is too tight and it’s cutting into the left side under my breast. Wouldn’t be so wacky if it didn’t start while I was in bed not wearing a bra!!!! Only on the left side too never the right. I’ve had this crazy feeling before actually many times and…
Today is the first day I’m going out in a week. Between my stomach issues and the excessive heat I’ve been home bound. I can’t even complain about it because I felt terrible for a good portion of those days. I was happy to have my family support and the unconditional love of my dogs. My weight shot back up, everything I lost over the last month is back plus a pound or two. I spoke to both neurologists and…
I had a visual appointment with my MS specialist yesterday. She is the one who prescribes and advises on my main MS drug therapy. Currently I am on Rituxan. The question of my disability getting worse really isn’t a question, it is a fact. We’ve discussed other drugs but unfortunately the one she was waiting for is still a few years off. That’s the Ibudilast. She did yesterday for the first time mention Mavenclad. In all honesty I didn’t know…
So after my gastroenterologist visit I was given stuff to do to “clean me out” Gastroenterologist visit. This is the same kind of prep for a colonoscopy. I had to take magnesium citrate and I was so nervous about having an accident. I took it and waited, and waited, and waited. This is supposed to work within 30 minutes to 3 hours. Eight hours later nothing. Finally the following morning I went a little, far from the “cleaned out” goal….
