There was no bad weather in NY that my vacation was cut short. However, today it is 5 degrees with a real feel temperature of negative 15. Yet I’m comfortable and was freezing in Mexico, what was that about? My trip was great but there was things that would have made things easier for me I guess I know now if there is ever a next time. One of my biggest obstacles was the bed. They gave me a step…
I fell asleep in the sun yesterday for a short time. I was awoken by my brother in law blocking the sun from me. He was sent by my mom who was scared I was going to fry. Well in typical Jamie fashion my face and chest burned. Today my face has already lost its color and my chest is bright red. Forgive my lack of makeup and frizzy hair. I just got out of the pool and shower shortly…
Those were the words this morning from my mom as she watched me swim in the pool. The pool which was so cold I might add. I was determined to do some laps this morning despite the near frigid temperature. I still swam for roughly a half hour. My mom, the sport she is, got in the frigid water with me so we could walk the pool. This particular pool gets shallow towards the middle and deeper towards the end….
It’s been less than 48 hours that I’ve been on vacation and my multiple sclerosis has not been easy. Half of my clothing I’ve worn so far has been washed due to bladder issues. Not a fun way to start. Really MS, you couldn’t keep that shit together for a few days? I’ve had countless people helping life me feet up small steps or onto golf carts from my family to hotel staff because my legs are far from cooperating….
It’s finally here a trip that’s been planned for years. It’s a family trip that was supposed to be for everyone’s big birthday celebration. My mom’s 70th, step dad’s 65th and my 45th. Since I just turned 47 you could see that didn’t work out. However now we are celebrating their 40th anniversary and we are leaving Sunday morning for Mexico. One week with my family in a sunny Mexico. I’ve never been there but everyone else in my family…
I have such issues with shoes now. I miss the days I could wear my boots with chunky heels. I never could wear stilettos but I could get away with those. Now I can only wear sneakers or wide shoes that are completely flat. I use to wear Keds sneakers all the time. Quick slip on shoes that I had no issues putting on myself. Now, thanks to swelling that is still unexplained, they are too small. I wear my…
My neurologist from early on has done MRI’s of my spinal cord. It is where most of my MS activity has been over the last 21 years. My first major attack back in 1998 left a large lesion in my brain but since than it has really all be spinal cord. So what does that mean? Well I asked my doctor the same question. He said spinal cord is why I have no cognitive issues as I’ve progressed. He also…
It’s was my routine checkup with my neurologist today. One month shy of my 21st anniversary of my multiple sclerosis diagnosis. This appointment was with the neurologist that made that diagnosis 21 years ago. He knows me well. My folder is very thick and over the years it has been thinned out and moved into storage. Every time I see my file it is a reminder how long my history with this disease has been. 21 years. I ignored it…
I asked in therapy about the issue I had in mahjong last week https://multipleexperiences.org/2019/01/04/couldnt-hold-myself-up/ with holding up myself up. We discussed the issue with my weakened core muscle. I’ve had multiple sclerosis for almost 21 years and it was my core region that was on of the first things effected by MS that never got better. It an area that has always given me issues and has always been an area we work on in therapy. A while ago I…
This wasn’t good. I went to play mahjong for the second time yesterday. It is a game like rummy cube with Asian tiles. Your hands must match to an approved hand on a card. You play with four people around a square table taking turns picking and throwing tiles. Not very strenuous unless you have some type of multiple sclerosis symptom making it difficult. I had that MS symptom. At first I was fine, other than my game itself. However…
