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Tag: Multiple sclerosis

Vagus Nerve research in Multiple Sclerosis

Vagus Nerve research in Multiple Sclerosis

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Ok a new MS research blog brought to my attention by my dad yesterday. It has to do with the Vagus Nerve (pronounced like Las Vegas). The vagus is a major nerve that runs throughout the body and controls crucial functions, like heart function and blood pressure, digestion, breathing and immune response. It also conveys sensory information to the brain about the current status of internal organs; a process termed interoception. The vagus nerve is a major therapeutic target for…

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Inside my room of quiet

Inside my room of quiet

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I am going to attempt to play mahjong today with the girls. This will be my first time since December. I am looking forward to playing. I also hope I can play. It would be a shame if I am still too weak to play. I have had enough reminders as to where I am today as opposed to where I was. Mahjong is my favorite and I really don’t want to be discouraged by something else. I put off…

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Missing my companions

Missing my companions

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I had a really good final physical therapy session on Monday. I walked further than I walked all this year. Where I am walking to, I don’t know. I have come a long way since coming home from the hospital. Still not where I was. I think some of the disability changes I can live with easily. Some are demoralizing and as an 50 year old woman, they came to fast. Multiple sclerosis is not an easy disease. I’m not…

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Processing Feelings

Processing Feelings

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I have to say I feel sad. I didn’t want to do much this weekend. I didn’t really want to talk much this weekend. I kind of wanted to hide away. My uncle’s death, my friend’s son, my friend’s sister, it all happened within two weeks of each other. So much sadness. I was so sad for my friends but my uncle hit me really hard. I didn’t want to talk about it the other blog because I wanted to…

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Goodbye to my Uncle

Goodbye to my Uncle

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I am writing this blog with a very heavy heart. My uncle passed away early Wednesday morning. He was hospitalized a few weeks ago with a pneumonia, UTI and kidney infection. Sound familiar? https://multipleexperiences.org/2022/03/04/multiple-sclerosis-vs-pneumonia/ My uncle also had Parkinson’s disease. MS and Parkinson’s seem to always be grouped together. Why??? MS and Parkinson’s both affect your central nervous system, which includes your brain and spinal cord. That’s why they both can affect how you move, sleep, feel, and talk. These diseases both affect your nerves….

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Nap time

Nap time

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I took a nap yesterday. First time I did that in ages. I didn’t sleep well the night before. I knew I needed more sleep. I kept my pajamas on and stayed under my blanket. I spoke to everyone I wanted to talk. I text my daughter and mom to let them know that I was going to sleep. I even put my phone on do not disturb. Thankfully, the house phone didn’t ring through out the afternoon. I appreciate…

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Multiple Sclerosis Adapt and Accept

Multiple Sclerosis Adapt and Accept

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Friday again. It was a week ago I wrote about weather changes once again affecting MS symptoms. https://multipleexperiences.org/2022/06/17/mentally-strong/. I had changed PT from Monday to Wednesday because I was having a rough day Monday. Well I guess I was having a rough day Wednesday too. I couldn’t walk five steps. So much for my goal of walking the hallway and back to my condo door. It wasn’t even close. I honestly couldn’t walk a few feet out my door. I…

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That’s a lot of Empty Space

That’s a lot of Empty Space

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I had my first big outing yesterday. I went with my stepdad to take Zoey to the vet. I wasn’t driving but I’ve been a passenger many times while he drives. I even went into the vet with Zoey. I saw people other than my family and close friends. That was a big deal. Thankfully Zoey is doing better. She will be on gabapentin for an extended period of time, possibly her life. I told her I have gabapentin on…

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Mentally Strong

Mentally Strong

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I am still running on empty this week. It is very strange, I walked the furthest I walked on Monday. Wednesday and Thursday I’ve had difficulty standing up and transferring. When I say difficulty, I mean it’s been harder than it’s had been over the previous weeks. It is requiring more energy to get myself up into the standing position. It is more laborious moving my feet. Good MS days and bad days. I have had some pretty intense workouts…

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Hives Everywhere and No Bees

Hives Everywhere and No Bees

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Have I discussed my hives with you yet. OMG, thank you multiple sclerosis for not allowing my skin to feel itching like normal people. I’ve had them for months. The spots come and go all over my arms. They seem to prefer the right arm more than the left. They weren’t this bad until recently. I’ve called my new doctor quite a few times. A doctor I was very excited to get. https://multipleexperiences.org/2022/05/04/home-visit-doctor/. She finally called me back and was…

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