I am still dealing with all the little things, but I’m not as down as I was writing Monday’s blog. I can report that there is still areas I’m making improvements. Tuesday I was actually able to get up from sitting on the toilet seat. It was a “dry run” exercise with my occupational therapist. I was actually able to get up twice. I didn’t even use that seat that goes over the bowl to raise you up. I was…
I’ve been overwhelmed lately. I actually missed a day blogging last week. My other blogs were far from anything difficult or heartfelt. I took a hiatus from blogging, dieting and even working out. I just feel very stressed lately because it never seems to end. Every day is another issue. Considering how this year started, the pneumonia, being bed bound, you’d think I could deal with anything. It just seems like every time I get through one obstacle or issue,…
Every year I put this on my blog. Every year he does this amazing fundraising event in my name. This is a MS fundraiser that I wouldn’t be able to participate in based on the level of my disability. I haven’t been able to ride a bike in many years. That is what is amazing about these fundraisers, most of the time the people participating don’t have MS. I thank everyone who donates. However, I truly thank the people out…
I have a question for my multiple sclerosis readers, how often do you come across other MSers on the same path as you? I have met many people with similar symptoms. I talk to many who were even diagnosed somewhat similarly. I don’t speak to many who have had the same progression path as me. There are always the similarities in the symptoms we face at certain points. The symptoms of MS are somewhat common as the disease progresses, at…
I’ve dealt with multiple sclerosis for 24 years yet I can still be surprised by its symptoms. You’d think I wouldn’t be shocked anymore. I had to spend most of my afternoon in my comfy chair. The exterminator was coming back, to treat my room, for the third time. It seems that the guy who boasted about his 12 year experience with bedbug, still missed the bedbugs alive in my room. He reported seeing nothing after I told him specifically…
I was thinking this weekend about when I worked. I’ve read a few MS blogs where people discussed when, if ever, do they disclose their disease to their employer? If you are new to my blog, I was diagnosed with multiple sclerosis when I was 26. I’m 50 years old now. I became disabled when I was 44. That left a lot of years when I worked. I held my last position for 13 years with the same company but…
I always said I was going to be honest when I wrote my blog. I have told many horrifying embarrassing stories over the 6 years I’ve been blogging. I guess now isn’t the time to stop. I’ve had bathroom issues my whole life. By bathroom, I mean bowel. It was very common for me to go to the bathroom as little as once a week, sometimes longer. I many times had to take laxatives to “move things along“. This in…
Happy hump day. Another day, another week. This week was a little different for me because my daughter is home for a visit. I love having her home. I love her energy in the house. I love how she climbs into my bed when she wakes up and is always in my bed before I go to sleep. I miss her when she leaves until I get use to her being gone again. Right now I get to enjoy her…
Ok a new MS research blog brought to my attention by my dad yesterday. It has to do with the Vagus Nerve (pronounced like Las Vegas). The vagus is a major nerve that runs throughout the body and controls crucial functions, like heart function and blood pressure, digestion, breathing and immune response. It also conveys sensory information to the brain about the current status of internal organs; a process termed interoception. The vagus nerve is a major therapeutic target for…
I am going to attempt to play mahjong today with the girls. This will be my first time since December. I am looking forward to playing. I also hope I can play. It would be a shame if I am still too weak to play. I have had enough reminders as to where I am today as opposed to where I was. Mahjong is my favorite and I really don’t want to be discouraged by something else. I put off…
