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Tag: Multiple sclerosis

The weekly review

The weekly review

Well Mahjong was a blast yesterday. I picked it up pretty well. My mom was impressed how quickly I got it. I grew up around my mom playing it every Wednesday and Thursday afternoon. If I was home sick I’d hear them all day calling the tiles. After a while you pick some things up. Everyone else was getting it by the end. We are going to get another lesson. I just finished swimming 50 laps. The pool was filed…

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Learning Mahjong tonight

Learning Mahjong tonight

I’m actually very excited about this. I’ve wanted to learn this for a long time. I’ve really had no excuse, my mother and stepfather teach people to play it. However, it’s not really my stepdads favorite thing. You need at least four people. We were going to enlist my daughter as the fourth. She really don’t want to do it. I finally just asked my friends and they were like “I want to learn”. So tonight it’s just my mom,…

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Why can’t dogs talk?

Why can’t dogs talk?

It’s difficult to have a chronic illness. It’s difficult to be a mom when your kid is sick. In both cases you usually have s good indication when something is wrong. It’s very difficult to be a parent to an animal when they’re sick. My poor little Zoey, she woke up on Saturday just lethargic. She followed me into the kitchen as normal and ate all of her breakfast but then kind of jumped up on me and slept. It…

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Bad MS day

Bad MS day

Yesterday was a tough one. From the moment I woke up, to the moment I went to bed. I even slept for 12 hours. It started first thing in the morning, I fell almost to soon as I got out of bed. The spasticity in my body was at an all time high. I really wanted to take a second neurontin, but I know that can make me very loopy and would make my walking even harder. Since I was…

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Other weather conditions that impact MS

Other weather conditions that impact MS

I had therapy yesterday, and it was harder than it was the other day. I happened to be talking about the difficulty with a couple other people and one of the therapists. She said she can’t discuss diagnosis but we could. Which made me automatically know that the people around me all had multiple sclerosis. We all said “Yup I have MS” and we all we agreeing how we were having a “tough” MS day. Is it possible for people…

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It’s just me, myself and I

It’s just me, myself and I

Oh, it’s just me, myself and I Solo ride until I die ‘Cause I got me for life Oh I don’t need a hand to hold Even when the night is cold I got that fire in my soul I woke up singing this song this morning. It’s easy to feel that way with a chronic illness. Especially if you’re single. It’s not that I don’t have a great family, I do. It’s not that I don’t have great friends,…

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It’s not the grapes..intermittent fasting next

It’s not the grapes..intermittent fasting next

Well it’s not the grapes that caused the weight gain or preventing the weight loss. I think the swelling of the feet the and the weight are tied in somehow just don’t know how. I follow the weight watchers each week and nothing. I eat a mostly plant based diet and work out 5 days a week. Truthfully my clothes fit they just aren’t as loose as they should be. The bigger size pants are really too big but this…

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The best concert I went to

The best concert I went to

My daughter is going to the governors Ball today. It sounds really fancy but it’s actually a concert. It’s on an island in New York City. Her boyfriend bought her and her best friend tickets for her birthday. It’s has a whole bunch of artist and I’m happy to say I don’t know any of them. I just know it has her favorite, Post Malone. I guess he’s popular because even as I was speaking this blog Siri new to…

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2018 MSAA’s New MS Research Update links

2018 MSAA’s New MS Research Update links

This is a super valuable link. I had this on my post yesterday and I think it got a little lost. The title wasn’t correct to attach this with. This shows you everything out on the market currently for MS. It shows the things that are currently in clinical trials as well as new research being developed in regards to MS. It is everything you need to know that is available, coming and being developed at this moment. https://mymsaa.org/publications/msresearch-update-2018/ For…

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MS World Day

MS World Day

Marked by May 30th. This day is to bring the MS community together. #bringinguscloser This day is for us to share our stories, raise awareness, and come closer to finding a cure. Today I’m going to attach a 2018 MSAA’s research update. It has so much information. It has all the current drugs, experimental drugs and drugs in clinical studies. A great research tool for anyone with MS. https://mymsaa.org/publications/msresearch-update-2018/ Full downloadable version https://mymsaa.org/publications/msresearch-update-2018/download/

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