Last Monday I had my routine mammogram. I never worry because to me, I already had multiple sclerosis, that was more than enough. However, I do have to admit, that my fingertips have no tactile feeling so I worry that I may not feel anything on a self breast exam. Last week I was so preoccupied and stressed dealing with the approval of my Ocrevus infusion that when I got a message from my doctor about the mammogram, I was completely…
Finally, after countless phone calls and so much unnecessary stress, my insurance approved Ocrevus. However in their approval, they didn’t approve me getting the infusion at Mt Sinai hospital where I was scheduled. I’m approved to go to a place on Long Island about 20 minutes from my house. Since I just got the approval at 5:30 on Friday evening, there was no way to get me scheduled at the new infusion site for Monday so it will be done…
Can you sue an insurance company for stress? I know you can sue debt collectors if their actions cause undue stress. I was wondering about insurance. The stress that I’ve been under for this last week dealing with my insurance is ridiculous. Everyday I speak to them I get a different answer. Yesterday I was told they were waiting for clinical notes and a copy of my last MRI showings I have relapse remitting MS. I can understand if this…
You can’t make this sh@t up. I get a call from the girl working on my infusion authorization, my insurance company wants to know the name, address and telephone number of my pharmacy where I am currently getting my prescriptions. The girl who called me really tried to be professional as possible but had the same reaction I had which was… WTF???? Will you be sending Ocrevus to my local CVS for me to pick up and take to NYC…
After 8+ years, I have to give up my normal everyday workout routines. I need to find something else that works that doesn’t aggravate my shoulder tendonitis. My wonderful therapists over at physical therapy have started adding in arm exercises to help build up my arm muscles again. The plan is that instead of going 2 days a week to go to therapy 3 days a week. The focus is going to change to building up arm strength to better…
Sure, it is scheduled, but the approval isn’t there. I received a call the other day from the insurance company that the expedited review has been denied. So I called the insurance company. I was told that the infusion was still under review. Under review for what??? When I tried to get Rituxan approved, the denial was because Rituxan wasn’t a FDA approved drug for multiple sclerosis. The denial letter went on to tell me based on my history that…
It is just one of those days when things are more difficult. It could be chalked up to sleep, I definitely didn’t sleep well last night. Most people would probably blame the weather. I don’t get this one honestly. I find my doctors and therapists blame the weather an awful lot when I have a “bad day”. I get the heat sensitivity one because I live that one but today it is 78 and cloudy. So today it’s blamed on…
Except my morning coffee, I’ve had no issues becoming vegan. I actually like it. It definitely has its challenges though. I was at a graduation party yesterday, of course, I couldn’t eat a thing. I always prepare beforehand when going on these ventures though, so for me it doesn’t become an issue. Yesterday, I ate before I went so I wouldn’t be hungry. At other events, I’ve brought my own food to heat up or brought a vegan veggie burger…
Id love to tell you I came out of yesterday’s round table discussion group enlightened with tons of new information, but I can’t. I unfortunately didn’t learn all that much. This is what I took away that I feel was note worthy. Dr. Krieger’s Leaky Pool analysis of MS. He created an app for an iPad and it’s only for an iPad. If you search for MS topography, you can download the app for free. …
I’m attending a discussion group today for people with multiple sclerosis or care givers of people with multiple sclerosis. It’s a round table discussion group that is lead by two different MS doctors. Many years ago, I was a patient representative for the drug Gilenya. I use to tell my MS story to a group of people either before or after the guest doctor would discuss MS and how the drug worked. I must admit it was a lucrative deal for…
