I never watch TV through my TV carrier. I always watch through my Firecube. No matter what it is, unless it’s something that I record, I’m never on my TV. That being said, it’s also very rare I see commercials. However I was catching up on old Bravo shows that I neither recorded or watched while they aired. On the Bravo app, there’s commercials. When you’re watching an entire season of some thing you end up watching a lot of…
I can’t believe it’s been six months already. Well I guess it has because all my reminders went off. Actually about a week after my last infusion I started receiving phone calls to set up my appointment. It was crazy. Actually I thought CVS specialty pharmacy was crazy. I never used them for my Rituxan or my Ocrevus so I was so confused why they kept calling me. Sure enough another change with my insurance. Great, because those have always…
I’m doing a lot better with my new wheelchair now. I don’t love everything about the chair but I am consistently using it now. It turns horribly, I hate that. It is also difficult if you maneuver wrong and hit a wall. You can’t just do a simple correction. You have to move forward or back still hitting the wall to maneuver yourself off the wall, if that makes sense. The wheels that move this chair are in the middle…
Is summer over yet? I’m ready to put on my oversized sweatshirt. It doesn’t matter that I stay indoors with AC the humidity penetrates to my bones. I know this question was asked by Steve over at MSich Chronicles http://msichchronicles.blog/2020/07/29/evansville-heat/, but how do people with MS live in hot, humid places? I’m in countdown mode until I can officially say its Fall. Right around the time of my next Rituxan infusion. For any new readers, I switched back to Rituxan…
I saw this somewhere in the midst of the virus outbreak and have wondered about it ever since. If I have an overactive immune system why am I in such a quarantine from this virus? According to my neurologist, it is because of Rituxan. I take a medication that wipes out a strain of my white blood cells. I can understand that. It makes sense. It was another blogger who made the comment that they very rarely get sick. It…
I went through my blog posts because I couldn’t remember how many times I’ve done Rituxan. I made the switch from Ocrevus back to Rituxan for the March 2019 infusion. This is my 3rd time. I was on Rituxan at an earlier time but was forced to change when Ocrevus came out. My insurance company, at the time, would not authorize Rituxan because it was not approved for multiple sclerosis. I than changed insurance companies once again and asked to…
On Wednesday I was feeling something itching me under me right breast. I looked many times but didn’t see anything. I was on high alert looking for blister under my breasts. I was very concerned over a repeat episode of the side effects that happened last September. https://multipleexperiences.org/2019/09/17/blisters-on-breast/?preview=true&frame-nonce=b3345af611. When my aid looked on Thursday she was able to see a few little bumps in the area like a rash. We used a little Neosporin on the area. Last night I…
Another day at home except this time I’m like many others in the world. Welcome to my life. This is definitely the time to binge TV, read a book or 8 and maybe start a jigsaw puzzle. I’m hanging with my puppies, in my chair, gazing at the water and listening to the construction still going on near my condo. It’s comforting to know that things haven’t stopped completely with this virus. I am still feeling tired from my Rituxan…
I don’t have much to say. I am home and things are uneventful here. I slept better last night which I think my dogs appreciated. I’m tired from the infusion but that is normal. I have ZERO blisters and that is the main thing. My regular aid has been out the last few days with a cold. She didn’t want to be near me which I am thankful for. I’ve had this nice girl here but there isn’t much to…
I’m happy to report that I have no blisters today. I had three little red marks last night that looked almost like welts. This morning I only saw one. I can’t even begin to tell you the relief that was for me. I will be able to continue Rituxan until something better comes along. That isn’t the greatest statement but it is better than the alternative of putting me on a drug that might not work for me. The infusion…
